At 14 month Corbin had a choking accident that left him with significant brain damage
HeyIts Pam, Makenzie's Mom. You have to let me know soome details of your experience. We were going to do the trial last month for Kenzie but never got the paperwork on scheduling it so I just let it go but still think at some point we will do the trial. I have talked to a few parents of kiddos tht have done the trial and the pump and have gotten mixed reviews. Let me know!
Hey, I am with Makenzie's mom. I am excited to hear about it too. We have thought about it for Emma too in the past, but we had heard mixed reviews too. Our biggest concern was that it would sedate Emma too much or adversely affect her siezures. There is also some concern that the areas that are already too low tone would get worse. Emma currently uses her tone for some function, and we have been afraid she would lose it. Her head control still lags some, so we didn't want that to get worse. I am excited to see how Corbie does. I am also excited about his new walker. I just order a new rifton for Emma. I hope I get the right size this time. Corbie's progess is like a good movie or a tv series that you can't stop watching. It's my favorite show!! LOL!! You all inspire me so much!!!I hope that in the videos you can explain, like you do a lot, how the trial works. I don't think the baclof. trial is surgical--right?? Anyway, yay, I am so happy that is working good so far!!
Pam, I will be updating about the trial very soon. I still have mixed feelings.
Amy,I'm so sorry I didn't get a chance to get you those numbers. I do believe it is a medium though & we are only borrowing it, other wise I would totally let you use it. The new walker is only a loaner & I don't like it. The rep is coming tomorrow to talk about other options
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