Tuesday, July 26, 2011
We got the most amazing mail today....Mr. and Mrs. P made a WONDERFUL donation to Corbin....THANK YOU so very much!
I'm working on picking up a wheelchair tonight for a person in need.
Monday, July 25, 2011
Sunday, July 24, 2011
Here's the reporter that interviewed us, she spent a lot of time helping us tell Corbin's story and taking down the information about....Donate a wheelchair or Need a wheelchair....we want to thank Ivory for all of her time.
Corbin's website.... http://www.corbinleeproject.com/
Photo amd videos.... www.dropshots.com/BabyCorbin Caringbridge.... www.caringbridge.org/visit/babycorbin (I started journaling there a few days after his accident, until I started his website)
I update on Corbin's FaceBook more often then here....Feel free to friend us.... http://www.facebook.com/CorbinAndCaradie
Saturday, July 23, 2011
Friday, July 22, 2011
For any information please e-mail us.... email@example.com
Feel free to check out Corbin's websites
Journal from the beginning www.caringbridge.org/visit/babycorbin
Many videos and pictures www.dropshots.com/BabyCorbin
Thursday, July 21, 2011
We have received many calls from people offering to help; a very nice couple donated a wheelchair that is a perfect fit, we have had many wanting to donate their wheelchairs, we have also had people offering to purchase Corbin a brand new wheelchair, another lady contacted me offering to donate all of her son’s equipment, we even had sisters offering to hold a fundraiser….with all the wonderful donations, we need a shed to hold the equipment and his daily care supplies in and then we can lock up everything.
We are so touched and honored that so many people want to help.
Wednesday, July 20, 2011
Now to the good stuff
I have been working on getting equipment/stuff with Corb’s Waiver (now that we have therapists things should go a little smoother). Some of the things are….a rover/stroller, gait trainer, a Dynavox eye gaze system, all sorts of switch toys and a few switches, books and maybe convert our van (that aint looking to promising though)
Meeting new people is very hard for me, I’m always home and for the most part I’m alone so I don’t have a whole lot of interaction with people *blushing* but….it’s been a few weeks with OT, PT and ST and I think things are going great (amazing story at the end) the therapists are very hopeful that they will get more then 10wks….me not so much, when ya been shot down as many times as I have…it’s hard to have much faith that Medicaid will approve more time….Corb is doing a great job and we’ll prove it!!!!
Corbin is very loose, he’s still got movements that take over but he’s so very calm….sadly we’ve lost his pizazz, he’s just not himself :-( I’ll take the loose and calm but the Blah has gotta go! (I can't get videos to upload here....DropShots)
Corb has been doing things I never thought possible, partly because he’s soooo Loose and Blah/Calm but….he’s reaching for things, sometimes on accident but a lot more are on purpose, he’s sitting nicely, he’s purposefully choosing more and more things, his finding what we ask him to find, is so fast now (even just a year ago his reaction time was much slower). All three therapists have got me cry’in, they all have said how much amazing potential he has!
Cute story about his comprehension….he now knows that burps and farts are funny
Some of you may remember Corb’s mouth was bleeding awhile back, well got him into the dentist and then the oral surgeon….next time he has Botox they will just put him all the way under (at the hospital) then they will do the Botox and the tooth extraction….I was so excited when the Oral Doc said they can do both at the same time….I’ll way take one sedation versus two any day!
With the acceptation of Noah we are all still thinking about moving to TX….(I kinda got cold feet)….never even been anywhere….just picking up and moving is a scary plan LOL
Baclofen pump (working or not working)
As ya all know, Corb is a very tight, ridge, hyper kind of kid….we were questioning if the pump is even working so at his next refill, the Doc is going to have to give him an extra pokie, to do a catheter port access study….we have been talking about decreasing his dose to see if it does anything but…….now with him being so super loose I’m not sure what to think….maybe it wasn’t working, then at the last refill, it started working….I don’t know!
Now hold on tight, you’ll never believe this
Corbin’s outside wheelchair (it was a very old beat up one) was stolen right out of our back yard, also at least one bike (we have a pile lol)….well I e-mailed the Duluth News Tribune asking how much it would cost to place an ad, someone e-mailed me a price but later today someone else e-mailed me asking if they could put an ad in the “eh? Column”
Mr. Blue….I was messing around with my photo editor and with the right setting his eyes are an incredible shade of blue (he doesn't have a black eye, he just has dark circles)
New toy rack.... (I can't get videos to upload here....DropShots)
We have unique pets....Oliver (cat) and Jak (dog) like Smudge and Coco (guinea pigs)
Corbin’s aides has a new puppy….Meet Sally (again I can't get videos to upload here....DropShots)
Ok on to the amazing story
Corbin Lee sat on a pretend red horsy (bolster) very nicely, he pushed backwards some but….most of the time he was able to correct himself and here’s the most amazing part….he was even reaching for the switch at the same time.
I love him more then words can explain!