Wednesday, October 28, 2009

Facebook

I have finally gotten around to making a new facebook. Feel free to request to be a friend. When you go to "Search for People" type in.... CaradieAnd Corbin

My camera broke so there won't be any pics or videos for awhile :-(

Hope all is well with everyone. Thank you again for being such faithful followers.

Caradie and Corbin

Wednesday, October 21, 2009

Under Quarantine

Austin is sick YUCK!!!!

Needless to say Noah is very excited he gets to camp out down stairs on the couch for tonight so he's not near Austin. We fed Austin super and snack in bed and his door is shut LOL And Corbin's room's curtains are shut, with the Lysol-spray in and spray out and hand sanitizer-form in and form outright there. Baby can't get sick. I'm already a little worried he doesn't really want to eat, he just does and he has been crying a lot more but I have also been gone a lot. I have been coughing for 3 months, I have been on and tried everything the doctors have told me to try and as of yet nothing has stopped the cough. I had a CT scan, I have sinusitis on top of the already bronchitis. Oh and to top it all off with all the coughing I have hurt my left rib cage BADLY. Like move just a little to much and squeak in pain (and still have to lift and move a 40# baby and a 62.5# wheelchair) OMG, my cat feel off the window and scared to BEEP out of me lol but I jumped so hard it felt like they all just broke, sucked!!! lol. We gotta get better he finally gets to get out of the house, with all of the other illness's and surgeries we were kinda cooped up for months.

Wish us luck to miss the H1N1.

Caradie and Corbin

Monday, October 19, 2009

Rolling and goober

Here's a clip of Corb's medication (Benztropine) starting to work very well. It's been 2 weeks at only 1ml, the dose will slowly continue to increase. I'm still increasing his pump every week - two weeks too, it's up to 610 (I think, kinda hard to keep track, Gillette is awesome about that though).


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Stinker, he does reach up and play with the toys a lot more now, he has even gotten his arms/fingers caught in some of them.

Here's Corb rolling at Polinsky Medical Rehab Center with his new OT Jason. I'm pretty excited because yeah Corb has three guys in his life but none that, like pick him up and move him around so he has always been extra fearful of men and in only 3 sessions, he's not showing as many stranger danger reactions. He's really handling this whole VERY new situation rather well. It's pretty cool too Jason already knew of Corb because 3 years ago he was attending the college of St. Scholastica, were Corb goes for their OT clinic (here we come in Feb Yeah!). Jason didn't have Corb there but he knew of him and remembered him right away. Jason has been really great and very understanding of...see now here's were I would get “get over it” from some people and it makes me not want to write what I want to say.....guess what I'm doing it anyway...Jason is very nice about the fact that I know Corb very well and that I just want to show him WHO Corb is, like the words I use, be it...get your head, sit way up, stick it way out and hold it (his tongue for chocolate lol) etc., or like how he needs a little help with that arm or that leg or like if you sit him cross-legged you have to tip his hips back or he can't stay up by himself (and isn't that the point) or like if you just wiggle a toy in front of him he will lift his head and will continue to engage with you or that face means something feels yucky or that face means he's VERY scared (this one makes me cry) or that face means he's hurting, maybe his tummy, maybe his tone has kicks in and a toy is under his hand and the pressure/force of his arm pushing down is hurting a hand/finger and since he don't know how to move his hand, the tone just continues to push harder harder harder and people want me to get over it when I want to share with school WHO he is. Oooooops didn't mean to write a book but anyway THANK YOU Jason for making me feel proud to be the mom I am and allowing me to be open to share my ideas and feelings with you and thank you for being excited to share your ideas with me. You and Corb are going to have a great time.


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OK so on we go to my very silly 14 year old lol

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We're thinking about asking the city maybe like the Mayor or some one, if him and his friends can do this as a fundraiser. They could collect donations while acting like goobers lol.

Corbin Lee's committee is working on a time and date to hold a fundraising meeting.

Caradie and Corbin

Saturday, October 17, 2009

Last few days

Here's a few photos and videos


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Austin just turned 14yrs old and he's WAY taller then me.

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Stonie's van.
Corb was pretty stressed out getting in and out but I know over time he's going to love it. While he was in the van he was totally fine.

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At it again...Velcro wall

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Caradie and Corbin

Saturday, October 10, 2009

Dropshots

Dropshots

Thursday, October 8, 2009

Not myself and black eye

So obviously you all may have noticed I have not been myself for quite some time now. A friend had said a while ago (Hi Liz), it's been a rough year for you guys huh? and really it's has been, it's been nothing but hospitals, surgeries, family issues, loosing two different workers that we all became very close to, no therapy, no makeover, still only being on the “list” for a waiver program, negative people (thank you), no physical support (all of you guys (well most) are such great supporters here) and then school almost pushed me over the top.

Well today when I walked into my shrinks office, she looked me right in the eye and said OMG your back. What did you do? I told her, I'm keeping my kid.

I have been seeing this same lady on and off for over 10 years (they only have to keep records for 10 yrs lol). She told me she has never seen me so devastated as she did last week. I know, I know some of you say get over it but the moment I decided I wasn't sending Corbin to school anymore, the weight of the world lifted off my shoulders and amazing things had already started to fall into place. I got a letter last week, Corbin's name came up for the next spot on the waiver program. He gets $3,000 a year to use for equipment, educational items, YMCA pass for the family, plus some other things. Then on Monday I called our medical assistance member services to ask how the PA's were going for therapy services and the guy said it looked like one for muscle retaining (PT) was approved, I freaked inside LOL, I calmly called the therapy center but sadly she hadn't gotten anything yet. But... the next day she called me and said yeah!!! OT was approved. He's already scheduled for 2x next week. Nothing about PT though but I'm hoping that got approved too and it just hasn't gotten to them yet. I have been fighting the state for 2 years to provide him with therapy services. 2 long years, he might have progressed even more if I actually had professional therapists helping me. Sorry I'm bit bitter that my poorness made me have to give up on my child. Noah came home one day from a friends house crying telling me that the friend's dad said maybe if your mom would get a job (to my 11 year old mind you). A day in the life of me over these past 5 years, unsure when a job would have fit in. But anyway back to the awesome news. Oh yeah I did say I wasn't sending Corb to school anymore, didn't I? I e-mailed his teacher, principal and the special education director, explaining I would no long be sending Corbin to school. I asked about homebound but that doesn't look likely. OK so now I know here even the not negative people are going to say he needs school for the socialization. Well before I made this huge decision to keep Corb home, I of course thought of that. And well Corb is the most social kid I know, ok maybe it won't be with his peers but WOW do the college girls go crazy over him. Speaking of college....YEAH we get to go back to UMD speech next week and in Feb we will go to CSS for OT. Now that we will have a Y pass Corb can also go to the little kids swim class again. Also I contacted Head Start to see if since he's only 5 and doesn't “have” to go to kindergarten, could he come back to school there. I have the application, stopping tomorrow to turn it in. On my way to a friend's house.

This gets me to my last exciting news. A local on-line supporter, a mom (my new friend Hi Paulette) of a kiddo like Corb and one of our past workers are going to help me have a “Not So Extreme MakeOver” Fundraising Weekend For Corbin Lee Fritze.

There are no finalized details but here's the rough draft.....



PS besides Corbin's black eye he has been great. Tummy issues still but crazy hyper, so funny and sleeping great.

Dropshots

Caradie and Corbin

Wednesday, October 7, 2009

Thank you Pam

Thanks Pam for explaining how to get a drop shots video on blogger.


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