tag:blogger.com,1999:blog-7567927821971187412024-03-13T16:41:56.599-05:00CorbinLeeProjectAt 14 month Corbin had a choking accident that left him with significant brain damageUnknownnoreply@blogger.comBlogger342125tag:blogger.com,1999:blog-756792782197118741.post-3633069113876689052017-01-05T12:56:00.000-06:002017-01-05T12:56:11.891-06:00gofundmeHi Friends<br />
<br />
Corbin's awesome brothers started a <a href="https://www.facebook.com/CorbinLeeFritze04/" target="_blank">Facebook</a> page<br />
And a <a href="https://www.gofundme.com/Corbinswheelchairvanfund" target="_blank">gofundme</a><br />
<br />
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-26366866610717416952015-07-30T11:11:00.000-05:002015-07-30T11:14:17.935-05:00Is there anyone still out there?Dear Corbin's Faithful Followers,<br />
<div>
<br /></div>
<div>
Please come on over to FaceBook to start following Corbin, all you gotta do is friend him and send me a message letting me know you want to follow him and I'll invite you to his Special Private FB Group<br />
<a href="https://www.facebook.com/CorbinLeeFritze" target="_blank">https://www.facebook.com/CorbinLeeFritze</a><br />
<br />
Thanks Corbin's Momma Caradie<br />
<br /></div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-54454421938539389822012-09-13T15:16:00.002-05:002012-09-13T15:16:53.061-05:00Frusterated Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-67285610277825964552012-06-14T23:03:00.000-05:002012-06-14T23:03:27.491-05:00Its official/Doctors names/Weirded out….<br />
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<b><u>Going to Mayo is finally official:</u></b></div>
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</div>
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The scheduler had to schedule it out to July 11-12 </div>
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(remember: July 11th….important for weirded out), </div>
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he was able to get all 4 appts scheduled into 2 days.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_W8AWNHstOiwysKi6eNA-l8PGYp7EiBV4KaI5oxj2UoqtNaMAV8HUbPYupcKs7XhXy5ZjTmFKHfQFWC5ryc-jgxmEsQPh88y0171Mo0IogSsAZ5YPlg0d8V8I74BS3-NM0fC_IglDoeo/s1600/100_7391.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_W8AWNHstOiwysKi6eNA-l8PGYp7EiBV4KaI5oxj2UoqtNaMAV8HUbPYupcKs7XhXy5ZjTmFKHfQFWC5ryc-jgxmEsQPh88y0171Mo0IogSsAZ5YPlg0d8V8I74BS3-NM0fC_IglDoeo/s320/100_7391.JPG" width="320" /></a></div>
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<o:p></o:p>Corb will be seeing:</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2OtY-BHmr6ZMKKCHxWEdsNknJmHQ_CxZAyQBwAy6UB971_s9ckED4NQItpv52fPxPypBdD_uvNRUPdI_5oHHUPOTdM1GfyBZ1LKgCNt49JcF1AqyJunIwc6KiPDhyArBre4dcdeYMpRY/s1600/Dr.+Stead.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2OtY-BHmr6ZMKKCHxWEdsNknJmHQ_CxZAyQBwAy6UB971_s9ckED4NQItpv52fPxPypBdD_uvNRUPdI_5oHHUPOTdM1GfyBZ1LKgCNt49JcF1AqyJunIwc6KiPDhyArBre4dcdeYMpRY/s1600/Dr.+Stead.jpg" /></a></div>
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Dr. Stead….Peds Neuro <o:p></o:p></div>
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(Squire (Matt) M. Stead, M.D., Ph.D.)</div>
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Dr. Lee….Neuro surgeon <o:p></o:p></div>
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(Kendall H. Lee, M.D., Ph.D.)<o:p></o:p></div>
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Nurse for videotaping, and the education consultant <o:p></o:p></div>
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<br /></div>
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Ok onto weirded out….a while back me and Corb’s fortune
cookie said: <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsLdvQk_nG_oy27ReJuCAM2PXLzhgYdOv8Q1-l_QNoyEJnvbzVRUikoK8OF9NNzvSdCRwya0tpwl0SilkJC0coaBT9ze3QJDSoVtF6w2fwJr2tKPQQ7B45GB_qkFdMNKeMuG6kDJv4Yyw/s1600/fortune.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="97" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsLdvQk_nG_oy27ReJuCAM2PXLzhgYdOv8Q1-l_QNoyEJnvbzVRUikoK8OF9NNzvSdCRwya0tpwl0SilkJC0coaBT9ze3QJDSoVtF6w2fwJr2tKPQQ7B45GB_qkFdMNKeMuG6kDJv4Yyw/s320/fortune.JPG" width="320" /></a></div>
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Well I marked it on my calendar….when I grabbed the </div>
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calendar to see if the dates the
scheduler had would work for us</div>
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POP there’s the little blue star I mark for 3
months later</div>
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<b><u><span style="font-size: large;">JULY 11!!!!</span></u></b><o:p></o:p></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyonkJcsBkJqAxPGzeuAxknJTrCB2rHhw6jVASpYlsWGrxQx89GcrlmrWpoU1Phne9UVHylIsLYCh1TlPObdjkfpJRxvEupSdD_w4RItesRKfbC_vyL1Ii1xLNQRWknqCMrNoUBzmVaJk/s1600/July+11.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="215" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyonkJcsBkJqAxPGzeuAxknJTrCB2rHhw6jVASpYlsWGrxQx89GcrlmrWpoU1Phne9UVHylIsLYCh1TlPObdjkfpJRxvEupSdD_w4RItesRKfbC_vyL1Ii1xLNQRWknqCMrNoUBzmVaJk/s320/July+11.JPG" width="320" /></a></div>
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I was so shocked I almost couldn’t talk to the scheduler....as
soon as I got off the phone,</div>
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it hit me like a ton of bricks, I started excited,
weirded out crying lol</div>
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it’s one of those things that was just meant to be<o:p></o:p></div>
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<o:p></o:p></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-74401924518501405022012-06-11T00:06:00.001-05:002012-06-11T00:12:15.901-05:00Walmart tripCorb was gaggy and snorty ALL day still
<br />
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</div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-5884250641634238922012-06-10T00:36:00.003-05:002012-06-10T00:40:20.137-05:00still sick....fell asleep around 11pm<br />
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</div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-65989007596049663202012-06-09T16:13:00.004-05:002012-06-09T16:13:46.661-05:00Another sick bad dayHe's been up doing this since 11pm
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It's 4pm and he's still SUPER gaggy (even with Zofran UGH)<br />
<br />
This happens over and over, sick days, pain days, Dystonic days and major changes in sleeping patterns....over and overUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-59035006393616891772012-06-08T21:18:00.001-05:002012-06-08T21:18:36.643-05:00What a roller coatser, Corb has had many rough days<div style="text-align: left;">
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He had a seizure on
Monday, May 28th</div>
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Then on Sunday, June 3rd
he had a very rough pain day….it always seems like it’s his tummy that is upset
(like cramps and gas)</div>
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<a href="http://www.onetruemedia.com/landing?&utm_source=emplay&utm_medium=txt5" target="_blank"></a><a href="http://www.onetruemedia.com/landing?&utm_source=emplay&utm_medium=txt5" style="text-decoration: none;" target="_blank">www.onetruemedia.com</a></div>
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<span style="font-family: verdana, arial, sans-serif;">Then on Mon, June 4th he was so tired
he could hardly hold up</span><span style="font-family: verdana, arial, sans-serif;"> his head....I got a little smile at least</span></div>
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Then came yesterday Thu,
June 7th, WOW he’s never had a spazy day like that bad ever</div>
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The day started off with
him a bit hyper but manageable….he was Corbin talk’in a LOT </div>
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<div style="font-family: verdana, arial, sans-serif; font-size: 12px; line-height: 20px;">
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<br /></div>
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<div style="font-family: verdana, arial, sans-serif; line-height: 20px;">
<div style="text-align: left;">
<span style="font-family: Calibri, sans-serif; line-height: 115%;">As
the day progresses all the more spazy he got, then it turned into one of his
full on crazy spazy nasty days</span></div>
</div>
<div>
<div style="text-align: left;">
<span style="font-family: Calibri, sans-serif;"><span style="line-height: 18px;"><br /></span></span></div>
</div>
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<embed flashvars="&p=110024672d4d6913b172974&skin_id=701&host=http://www.onetruemedia.com" height="382" name="FLVPlayer" pluginspage="http://www.macromedia.com/go/getflashplayer" quality="high" salign="LT" scale="noscale" src="http://www.onetruemedia.com/share_view_player?p=110024672d4d6913b172974" type="application/x-shockwave-flash" width="408" wmode="transparent"></embed></div>
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<div style="font-family: verdana, arial, sans-serif; font-size: 12px; font-style: normal; font-variant: normal; font-weight: normal; line-height: 20px;">
<br />
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<br /></div>
</div>
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<span style="font-family: verdana, arial, sans-serif;"><span style="line-height: 20px;">Here
he is at midnight, even after I tried giving him some of his Valium (never
tried it before and it didn’t help AT all)</span></span></div>
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</div>
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<embed flashvars="&p=110046658315589fe7d3a58&skin_id=701&host=http://www.onetruemedia.com" height="382" name="FLVPlayer" pluginspage="http://www.macromedia.com/go/getflashplayer" quality="high" salign="LT" scale="noscale" src="http://www.onetruemedia.com/share_view_player?p=110046658315589fe7d3a58" type="application/x-shockwave-flash" width="408" wmode="transparent"></embed></div>
<div style="font-family: verdana, arial, sans-serif; font-style: normal; font-variant: normal; font-weight: normal; line-height: 20px; margin: 0px; padding-bottom: 15px; text-align: center; width: 408px;">
<div style="font-size: 12px;">
<br />
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<div style="font-size: 12px;">
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<br /></div>
</div>
<div style="text-align: left;">
<span style="font-size: 12pt;">He was actually awake until 10:00am, Fri 8th (26ish straight hours of being awake)</span></div>
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<br /></div>
</div>
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<div style="text-align: left;">
<span style="font-size: 12pt;">He
was pretty calm and totally exhausted….I was taking a video of him to show how
sleepy he was when he began throwing-up</span></div>
</div>
</div>
</div>
<div>
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<embed flashvars="&p=1101262c7366036cd5250e7&skin_id=701&host=http://www.onetruemedia.com" height="382" name="FLVPlayer" pluginspage="http://www.macromedia.com/go/getflashplayer" quality="high" salign="LT" scale="noscale" src="http://www.onetruemedia.com/share_view_player?p=1101262c7366036cd5250e7" type="application/x-shockwave-flash" width="408" wmode="transparent"></embed></div>
<div style="font-family: verdana, arial, sans-serif; font-style: normal; font-variant: normal; font-weight: normal; line-height: 20px; margin: 0px; padding-bottom: 15px; text-align: center; width: 408px;">
<div style="font-size: 12px;">
</div>
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<br />
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<br /></div>
<div class="separator" style="clear: both; font-size: 12px; text-align: left;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEZYpI54kfoSXhjsuBNhpNt-UiUXgLlUcudwL7vhQex3oB0xCXluBQGL2BkP5cTGcZt_1tg3ynFUUJ1L8o4StoiBV_kKQHwhHTy_67lJQ3Owj8_J9kYZXIEjIsaqTFnfrVS-iFRrUBBPM/s1600/%238+6-8-12+looks+sick.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEZYpI54kfoSXhjsuBNhpNt-UiUXgLlUcudwL7vhQex3oB0xCXluBQGL2BkP5cTGcZt_1tg3ynFUUJ1L8o4StoiBV_kKQHwhHTy_67lJQ3Owj8_J9kYZXIEjIsaqTFnfrVS-iFRrUBBPM/s320/%238+6-8-12+looks+sick.JPG" width="320" /></a></div>
<div style="font-size: 12px; text-align: left;">
<br /></div>
<br />
<div class="MsoNoSpacing" style="font-size: 12px; text-align: left;">
<span style="font-size: 12pt;">While
I sit and cry because I just don’t know why? I just don’t know? what am I doing
wrong? the pain he goes through is clearly his tummy but WHY? how do I help? <o:p></o:p></span></div>
<div class="MsoNoSpacing" style="font-size: 12px; text-align: left;">
<br /></div>
<div class="MsoNoSpacing" style="font-size: 12px; text-align: left;">
<span style="font-size: 12pt;">And
these crazy extreme spazy Dystonic days I’m at least going in the right
direction to get help….Mayo here we come :-D I know I can’t “fix” Corbin’s
brain but I’m sure gonna do all I can to make his life better.<o:p></o:p></span></div>
<div class="MsoNoSpacing" style="font-size: 12px; text-align: left;">
<br /></div>
<div class="MsoNoSpacing" style="font-size: 12px; text-align: left;">
<span style="font-size: 12pt;">I
know this rollercoaster life is one of those things, you deal with what it is,
because it is….but he doesn’t deserve to live like this….it takes a *LOT* out
of him OVER and OVER, YEAR after YEAR….</span></div>
<div class="MsoNoSpacing" style="font-size: 12px; text-align: left;">
<br /></div>
<div class="MsoNoSpacing" style="font-size: 12px; text-align: left;">
<span style="font-size: 12pt;">Here’s
him still sleeping at 9pm (just about 11
straight hrs)<o:p></o:p></span></div>
<div class="MsoNoSpacing" style="font-size: 12px; text-align: left;">
<span style="font-size: 12pt;"><br /></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPuVLs7AYuQ0pr70idmU8fBpi7QMqbUdySW_nFj7weix2IlYu4jakiviNluDS9mPPd7WDHy1kdN8LD-Uki3zB0fhuwlgxtn_vdsY7GKmVlEkb8abx_ZLFJiidwCmNoRP2J6HnVXZ_4SzI/s1600/%239a+6-8-12+still+sleeping+9pm.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiPuVLs7AYuQ0pr70idmU8fBpi7QMqbUdySW_nFj7weix2IlYu4jakiviNluDS9mPPd7WDHy1kdN8LD-Uki3zB0fhuwlgxtn_vdsY7GKmVlEkb8abx_ZLFJiidwCmNoRP2J6HnVXZ_4SzI/s320/%239a+6-8-12+still+sleeping+9pm.JPG" width="320" /></a></div>
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<span style="font-size: 12pt;"><br /></span></div>
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</div>
<div class="MsoNoSpacing">
<span style="font-family: Verdana, sans-serif;">I'm going to go try to change him without startling him awake, I
don’t want to cause a seizure....I don’t<span class="apple-converted-space"> </span></span>know for sure but it seems when we’ve woken him up
and tried to keep him awake, shortly after he falls back to sleep he has a
seizure<o:p></o:p></div>
<div class="MsoNoSpacing">
<br /></div>
<div class="MsoNoSpacing">
<span style="font-family: Verdana, sans-serif;">If he stays sleeping I’m climbing into bed and crossing my fingers
he sleeps a little while longer :-D</span><span style="font-size: 16.0pt;"><o:p></o:p></span></div>
</div>
</div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-1616674705456000342012-06-01T00:33:00.000-05:002012-06-01T00:33:02.528-05:00Fundraiser/Surgery/MayoOur turn out was very low but it was a success! (Mayo here we come)<br />
<br />
I had my surgery (vaginal hysterectomy); unfortunately I’ve had some minor complications….I ended up at the ER in so much pain, the pain was incredible, it was worse than a kidney stone, it ended up being the gas that they pump into you during surgery (it still hurts bad) I decided to go to my Doc yesterday to check things out, and cause it has started to hurt to pee, so just to make sure I don’t have an infection she started me on an antibiotic….and now today because I think I’m super woman, hate being taken care of, hate asking for help and don’t want to seem like a big baby, I have over done it and now the surgery part hurts like hell too!!!!! :-(<br />
<br />
Anyway onto Mayo, I have started to prepare for the trip….because Corb has started to have seizures I decided to call and ask the Mayo Neuro we’re going to go see if he could just suggest a seizure Doc for Corb, that way maybe I can get both things taken care of at the same time (and of course I also need the Neuro to know about the seizures)….well GREAT news, he deals with seizures too (but if needed he will suggest a seizure specialist) Yay Us!!!!<br />
<br />
I spoke with the normal scheduler, we discussed Monday June 18th, as late in the day as possible, she’s having the Neuro’s personal scheduler get back to me because the Neuro may want Corb to see other specialists on the DBS committee (this Neuro is amazing, he personally called me back when I wanted to know if he’d see Corb again, he even remembered us). If all goes well we’ll be able to just leave early on Monday for the first apt, for sure sleep over Mon and then go from there!<br />
<span style="text-align: center;"><br /></span><br />
<span style="text-align: center;"> I love him SOOOO much</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMwMTaYF-ieQ0J0nrUxmBw3yWxCjdYA_syaIoDW7WHAhkyw8dJ50StesRiTCk4BOtuKy9mZQ2ZTu_NmM7SDg9b8SlPgc3u01D-XIStZ5QMQhyphenhyphenXUTxpf0ZFY6N7BtHGTeX88s6_NJ_burE/s1600/in+van.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMwMTaYF-ieQ0J0nrUxmBw3yWxCjdYA_syaIoDW7WHAhkyw8dJ50StesRiTCk4BOtuKy9mZQ2ZTu_NmM7SDg9b8SlPgc3u01D-XIStZ5QMQhyphenhyphenXUTxpf0ZFY6N7BtHGTeX88s6_NJ_burE/s320/in+van.JPG" width="278" /></a></div>
<div style="text-align: center;">
Daddy, Momma and Corbin's hands of love heart</div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyezddB-27bodfcjPjxbrgxjJ9Y1SnjJxvLIzCKC3xo2NiTiiC_6R9oxtXaJkk25A6Z3xFQmdatHR-hu7_IoYbCUkmgzQ7Vxz71pavSa92aYTKusRuFZUqDFOg_DqptVAkNNT9OHn3LtQ/s1600/heart+hands+1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyezddB-27bodfcjPjxbrgxjJ9Y1SnjJxvLIzCKC3xo2NiTiiC_6R9oxtXaJkk25A6Z3xFQmdatHR-hu7_IoYbCUkmgzQ7Vxz71pavSa92aYTKusRuFZUqDFOg_DqptVAkNNT9OHn3LtQ/s1600/heart+hands+1.jpg" /></a></div>
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-44535567485327631272012-04-23T23:21:00.002-05:002012-04-23T23:21:26.865-05:00Corbin's Dollars for Dystonia - Chipin<object width="250" height="250"><param name="movie" value="http://widget.chipin.com/widget/id/f5c8d48028924d54"></param><param name="allowScriptAccess" value="always"></param><param name="wmode" value="transparent"></param><param name="event_desc" value="Corbin%27s%20Dollars%20for%20Dystonia%20is%20raising%20money%20for%20Corbin%20to%20go%20to%20the%20Mayo%20Clinic%20in%20Rochester%2C%20MN%20for%20an%20evaluation%20for%20Deep%20Brain%20Stimulation"></param><param name="color_scheme" value="blue"></param><embed src="http://widget.chipin.com/widget/id/f5c8d48028924d54" flashVars="event_desc=Corbin%27s%20Dollars%20for%20Dystonia%20is%20raising%20money%20for%20Corbin%20to%20go%20to%20the%20Mayo%20Clinic%20in%20Rochester%2C%20MN%20for%20an%20evaluation%20for%20Deep%20Brain%20Stimulation&color_scheme=blue" type="application/x-shockwave-flash" allowScriptAccess="always" wmode="transparent" width="250" height="250"></embed></object>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-78186725632516458312012-04-19T13:42:00.003-05:002012-04-19T13:44:53.439-05:00Corbin's Dollars for Dystonia<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiY22VKRNT5JnrG1qMMQ_yoTrYa4cSCX6pN6coVf1Q2haQJRUOze5stRGOUvj3qpXAhxX7lZ0X512CARCQyWEbhZb7gs-YuYS0wg88myV88skMz8GutwoUaWmFtX2yAb8BProRAvYtvqLQ/s1600/Pic+flyer.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="306" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiY22VKRNT5JnrG1qMMQ_yoTrYa4cSCX6pN6coVf1Q2haQJRUOze5stRGOUvj3qpXAhxX7lZ0X512CARCQyWEbhZb7gs-YuYS0wg88myV88skMz8GutwoUaWmFtX2yAb8BProRAvYtvqLQ/s400/Pic+flyer.jpg" width="400" /></a></div>
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-69302907373227908742012-02-16T01:04:00.001-06:002012-02-16T01:06:00.832-06:00First Wal-Mart outing in the stroller and low tech eye gaze<br />
<div class="MsoNoSpacing">
<div style="text-align: center;">
We had to air up the stroller tires….watch Corb’s face
expressions, he’s so FUNNY….I spend every day, all day looking at him: I know
every look, every sound and every move <o:p></o:p></div>
</div>
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dwNVPkFPqGgGzRRzvyhjuzFMAS3ACuGVqmRIhcLzAvWzMqKYh4pMnq3aKGsUTwK8ujJfCr-Ih4nTw9599lqZQ' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
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So happy to be at Wal-Mart </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDKMOybdymZeEQeCNGlq63V7vGLpaeHDu6qO47XfBy1XixcFVJXPG8fLSq4QGlkaYhVh1AGViRcfAUzoBeyO_Se5_lmqJ5QQf5CPXxliX60Qz1THubN5vGbfPXVRGruy8fl71SrlYqd88/s1600/2-15-12+2+At+WalMart.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDKMOybdymZeEQeCNGlq63V7vGLpaeHDu6qO47XfBy1XixcFVJXPG8fLSq4QGlkaYhVh1AGViRcfAUzoBeyO_Se5_lmqJ5QQf5CPXxliX60Qz1THubN5vGbfPXVRGruy8fl71SrlYqd88/s320/2-15-12+2+At+WalMart.JPG" width="240" /></a></div>
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He was so nice and comfy in his red chair stroller
(everyone loved it too :-D lol)</div>
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<br /></div>
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</div>
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<br /></div>
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After Wal-Mart<o:p></o:p></div>
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<div class="MsoNoSpacing" style="text-align: center;">
I was showing Corb this Sponge Bob balloon in the store
and his tracking was </div>
<div class="MsoNoSpacing" style="text-align: center;">
Soooo fast (I almost couldn’t believe it) we asked Daddy
if it was on clearance could we have it….$1.50 SOLD….I had the string wrapped around
his arm/fingers he was so interested, he laid on his bed forever without any
crazy movements or gagging LOL</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQwVZRoXzthbiV2JFslZ1U2FuOJbocfzcikiQv4RzXvfmeSZrLXwETrp-37AXxit_4YiUZ60rvSYqy_Yht_Ck4EkWwoYpQjn8hSB1TP1LAVRy5bHE8pCaL83fIdWPL-e2WY_1NnM9SkHs/s1600/2-15-12+4+Playing+with+Sponge+Bob+balloon.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQwVZRoXzthbiV2JFslZ1U2FuOJbocfzcikiQv4RzXvfmeSZrLXwETrp-37AXxit_4YiUZ60rvSYqy_Yht_Ck4EkWwoYpQjn8hSB1TP1LAVRy5bHE8pCaL83fIdWPL-e2WY_1NnM9SkHs/s320/2-15-12+4+Playing+with+Sponge+Bob+balloon.JPG" width="240" /></a></div>
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<div class="MsoNoSpacing">
I spent so much time and energy into the Dynavox EyeMax
that I slacked on the picture cards I started making (was hoping we didn’t need
them, was hoping that he could just use the device) but anyway, all I did was
find pics on-line of his fav cartoons and took pics of real stuff from home and
pasted the pics to index cards and laminated them with ”Duck Tape” Laminate
shelf liner paper and then I used a piece of Plexi-Glass with Velcro strips (each
side has Velcro, the soft stuff on side and the rough on the other)<o:p></o:p></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiW-62DlWSWw1oc5b0AMmpew2aU707xLdBfdmvVQDg4nPNBy7Jlq8PxB5fZCdOqaxkBEFPvAd0ZLzDJ_-kwaCtiaoiiCuyGb2RdyzAJjcxxWBucII0ItPACmgX9FYmSgCIgVKD1bIh-vU/s1600/2-15-12+5+Duck+tape.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiW-62DlWSWw1oc5b0AMmpew2aU707xLdBfdmvVQDg4nPNBy7Jlq8PxB5fZCdOqaxkBEFPvAd0ZLzDJ_-kwaCtiaoiiCuyGb2RdyzAJjcxxWBucII0ItPACmgX9FYmSgCIgVKD1bIh-vU/s320/2-15-12+5+Duck+tape.JPG" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQAam8XsMDg5Biat8S42gsBmJCEx51fq5v_eiSrl4aty0WBEU8I3OV75VRbPf_mhcY3wHH7DuCsyXZTt6Z69hClcJAVi8ry7DwZDuO5dwLzeDMp9Imtlc5aI5DRY5Lg0wRjVBjSwZU8sM/s1600/2-15-12+6+Laminate.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="97" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQAam8XsMDg5Biat8S42gsBmJCEx51fq5v_eiSrl4aty0WBEU8I3OV75VRbPf_mhcY3wHH7DuCsyXZTt6Z69hClcJAVi8ry7DwZDuO5dwLzeDMp9Imtlc5aI5DRY5Lg0wRjVBjSwZU8sM/s320/2-15-12+6+Laminate.jpg" width="320" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeNxKaKb0Jum7Tx3-fmVzbFcquNiA6K-6d6KBIfqk-IY8Ilt3WEQfSUT_w1m_5Kaz5S8mY9aLBT6_avnOw-1UHewZ8B25ol4jAdoITwFcS8CpXJjOz7l242bnc8cAZRjHv7AaBnT_G6-s/s1600/2-15-12+7+Picture+cards.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeNxKaKb0Jum7Tx3-fmVzbFcquNiA6K-6d6KBIfqk-IY8Ilt3WEQfSUT_w1m_5Kaz5S8mY9aLBT6_avnOw-1UHewZ8B25ol4jAdoITwFcS8CpXJjOz7l242bnc8cAZRjHv7AaBnT_G6-s/s320/2-15-12+7+Picture+cards.JPG" width="320" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjWI8hVEtxzrN7eWm7CTKoArVSChrX7mt13Kiy4N4ovWobWtO6_QdcIwlnn8Ebkpp9U3xFi-flrHOn2Z8HCqQmRdc6hl0hC1g_OMWctI9imCuspM7ueeIJVtJ2EDG-7Wz-Y7l-k2j8o5Q/s1600/2-15-12+8+Double+sided.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjWI8hVEtxzrN7eWm7CTKoArVSChrX7mt13Kiy4N4ovWobWtO6_QdcIwlnn8Ebkpp9U3xFi-flrHOn2Z8HCqQmRdc6hl0hC1g_OMWctI9imCuspM7ueeIJVtJ2EDG-7Wz-Y7l-k2j8o5Q/s320/2-15-12+8+Double+sided.JPG" width="320" /></a></div>
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Ok so now to the AMAZING part, (please keep in mind, we
have NEVER went over these new cards yet), tonight right before bed we played
with the new cards….7 out of the 8 times, he picked the right picture….so cute, the one
he got wrong, when I said no that’s Sandy, not whoever it was, he chuckled</div>
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PLEASE-o-PLEASE
let him understand what pics are and to be able to make the right choice each
time Please!</div>
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<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-76643848367800264732012-02-09T00:18:00.001-06:002012-02-09T00:26:13.329-06:00Do with what you have!<div class="separator" style="clear: both; text-align: left;">
Corbin's wheelchair is very dangerous for him and since the seating rep won't call me back about our Rover Stroller prior authorization....I decided to deal with it myself</div>
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Sooooo....I used the Rover Stroller frame that was donated to Corb back when someone stole the little wheelchair from the yard....the chair that it comes with it, is WAY to big....so I found a way to jimmy rig his red chair to the frame :-D </div>
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(please excuse the messy floor, duck tape is actually hard to work with lol)</div>
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Rover Stroller-drilling</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnZyuKQwJOQLf0vzrGQXJEy6t3697UOoWOpv5jVkhhrUoVMOU1u4PGxd_-Gv1lYCTcN_DRl1HGXK-6f1MGjXM8Gx1EhGeVlS2Oy9bYaoMhaFl3XslwbR3-QmMFA-CzThSl_DOJe9hKBzQ/s1600/2-8-2012+1+Rover+Stroller-drilling.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnZyuKQwJOQLf0vzrGQXJEy6t3697UOoWOpv5jVkhhrUoVMOU1u4PGxd_-Gv1lYCTcN_DRl1HGXK-6f1MGjXM8Gx1EhGeVlS2Oy9bYaoMhaFl3XslwbR3-QmMFA-CzThSl_DOJe9hKBzQ/s320/2-8-2012+1+Rover+Stroller-drilling.JPG" width="320" /></a></div>
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Rover Stroller-bolting</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcBFNYDSsz6B2-CWBlf5PS8VTc1eH9ZrtIAfhpHLUpBc_v6RiCIigh0_gyisPSFdn0q9YpskZZSNxerfU3aHk15IyOyeVuMJ7T4091z8WU_9GW4_DnIPerpOG0L9UGVBH2vTL4GWO2vo8/s1600/2-8-2012+2+Rover+Stroller-bolting.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcBFNYDSsz6B2-CWBlf5PS8VTc1eH9ZrtIAfhpHLUpBc_v6RiCIigh0_gyisPSFdn0q9YpskZZSNxerfU3aHk15IyOyeVuMJ7T4091z8WU_9GW4_DnIPerpOG0L9UGVBH2vTL4GWO2vo8/s320/2-8-2012+2+Rover+Stroller-bolting.JPG" width="320" /></a></div>
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Rover Stroller-bolted</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOFr1FujaPcVBKOMt2DveLEldDFkrh8R0OuK5BufkdTmjSV3g3jhI57YiS-Q4MEqrKRMpUnBSsho41cjDaKUv0pjCZ7Q-iuvXPWDfhh26dauiW5cxdFMLinRh2Bjf2oopD20b7CKyC_fo/s1600/2-8-2012+3+Rover+Stroller-bolted.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOFr1FujaPcVBKOMt2DveLEldDFkrh8R0OuK5BufkdTmjSV3g3jhI57YiS-Q4MEqrKRMpUnBSsho41cjDaKUv0pjCZ7Q-iuvXPWDfhh26dauiW5cxdFMLinRh2Bjf2oopD20b7CKyC_fo/s320/2-8-2012+3+Rover+Stroller-bolted.JPG" width="320" /></a></div>
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Rover Stroller-totally done 1</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiFSkzzT8oZu67FLBRvjDWhue-yOOQibaWrGnpcUtLpaMxJ1Pf3-t2cU4So6l1d61ABbkeBBo0-KCpwURwg4l4CPH1UGApr65hQ2h4MvdnMr0XEHsIfjZJcbe49PG6cel1-vCjSgM8PlpQ/s1600/2-8-2012+4+Rover+Stroller-totally+done+1.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiFSkzzT8oZu67FLBRvjDWhue-yOOQibaWrGnpcUtLpaMxJ1Pf3-t2cU4So6l1d61ABbkeBBo0-KCpwURwg4l4CPH1UGApr65hQ2h4MvdnMr0XEHsIfjZJcbe49PG6cel1-vCjSgM8PlpQ/s320/2-8-2012+4+Rover+Stroller-totally+done+1.JPG" width="320" /></a></div>
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Rover Stroller-Totally done 2 </div>
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(the buckle is to hold the frame closed for easy storage) </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOlavHard8WHRY5NFALGvIJpWwK3QTq5XA1zH0T8RlZy9DfEtxO36MnDlVre8BuEp27HAXNKRVx56Q1WyjeEKN5lKCy6QfkKP8g-Sn7lrEB80irqU9YaQzeo8V7ioKmLSKs059uil-pK8/s1600/2-8-2012+5+Rover+Stroller-Totally+done+2.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOlavHard8WHRY5NFALGvIJpWwK3QTq5XA1zH0T8RlZy9DfEtxO36MnDlVre8BuEp27HAXNKRVx56Q1WyjeEKN5lKCy6QfkKP8g-Sn7lrEB80irqU9YaQzeo8V7ioKmLSKs059uil-pK8/s320/2-8-2012+5+Rover+Stroller-Totally+done+2.JPG" width="320" /></a></div>
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Rover Stroller-totally done 3</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEir9UZnpnkWApCy3Hy6lifu1nFJSnCkbVhYS-6ivBxPTBojEErzUUPGpLxEb1cspD08XtVOgt2WK41UWDET099_wkmTtgsFlzavffQY8JB0aYjy5gjxr-F6OSpbU3f-yyiZciTkh8f-Re0/s1600/2-8-2012+6+Rover+Stroller-totally+done+3.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEir9UZnpnkWApCy3Hy6lifu1nFJSnCkbVhYS-6ivBxPTBojEErzUUPGpLxEb1cspD08XtVOgt2WK41UWDET099_wkmTtgsFlzavffQY8JB0aYjy5gjxr-F6OSpbU3f-yyiZciTkh8f-Re0/s400/2-8-2012+6+Rover+Stroller-totally+done+3.JPG" width="300" /></a></div>
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Rover Stroller-Coloring w-Duck tape 1 (I'm the Duck Tape Queen)</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0H9T4keCzr6u0-rDQd6kfOjD7K0YhmCUk80fEYlKTB7VOfm4DF6Dkk_OEIrU_ryUh75_xaj0_i-IZ1gPFEX7UDjV9eyIuwZzq-SB3gSqKoV7g46kCMSFo3pl3-cPemI-7SfrEgINo1Sw/s1600/2-8-2012+7+Rover+Stroller-Coloring+w-Duck+tape+1.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0H9T4keCzr6u0-rDQd6kfOjD7K0YhmCUk80fEYlKTB7VOfm4DF6Dkk_OEIrU_ryUh75_xaj0_i-IZ1gPFEX7UDjV9eyIuwZzq-SB3gSqKoV7g46kCMSFo3pl3-cPemI-7SfrEgINo1Sw/s320/2-8-2012+7+Rover+Stroller-Coloring+w-Duck+tape+1.JPG" width="320" /></a></div>
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Rover Stroller-Coloring w-Duck tape 2</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgS37rwOaFogoJWdm-plMp3yyA82WmhEwDVND2wI_h3mO41IqC_VK3OnEh0vWtOP3Z-6zZCXxMPT1GyvQ_r3qaQWpSTK5WaG_Sr1gaSDNqnxBMGh6DS_9YxucJvlS_T0RhGZf-10qNR_R0/s1600/2-8-2012+8+Rover+Stroller-Coloring+w-Duck+tape+2.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgS37rwOaFogoJWdm-plMp3yyA82WmhEwDVND2wI_h3mO41IqC_VK3OnEh0vWtOP3Z-6zZCXxMPT1GyvQ_r3qaQWpSTK5WaG_Sr1gaSDNqnxBMGh6DS_9YxucJvlS_T0RhGZf-10qNR_R0/s320/2-8-2012+8+Rover+Stroller-Coloring+w-Duck+tape+2.JPG" width="320" /></a></div>
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Rover Stroller-Left arm padding<br />
(arm rests are swimming floaties, zip tied to the frame)</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQEBzuiEEHOw49egvQBWTnSATIV-3fL4PsrtL-w8oRVsEXEpq_gAql8_gRBxooIRRrwd7Vj2b7fc5ilt0-3SqlQ74pQ6NqUrJemh_EkBVKlPzniEq_tFVSZd1AaHN95L3744Q6HzDbHsU/s1600/2-8-2012+9+Rover+Stroller-Left+arm+padding.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQEBzuiEEHOw49egvQBWTnSATIV-3fL4PsrtL-w8oRVsEXEpq_gAql8_gRBxooIRRrwd7Vj2b7fc5ilt0-3SqlQ74pQ6NqUrJemh_EkBVKlPzniEq_tFVSZd1AaHN95L3744Q6HzDbHsU/s320/2-8-2012+9+Rover+Stroller-Left+arm+padding.JPG" width="320" /></a></div>
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Rover Stroller-Right arm padding</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_PiTA5eykX0jPWmCVUxghZh8eSm4yzEf0Kapjvnyw52G9-bKRUdYkCkS6FzlNIQVHrSnoiwZcUN5qvf-EzeFc2s-L0Bw9T95WPo2e522Smhcq_HI2QMwj3kAgTE5Ypt0G2BHy3-QMUjE/s1600/2-8-2012+92+Rover+Stroller-Right+arm+padding.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_PiTA5eykX0jPWmCVUxghZh8eSm4yzEf0Kapjvnyw52G9-bKRUdYkCkS6FzlNIQVHrSnoiwZcUN5qvf-EzeFc2s-L0Bw9T95WPo2e522Smhcq_HI2QMwj3kAgTE5Ypt0G2BHy3-QMUjE/s320/2-8-2012+92+Rover+Stroller-Right+arm+padding.JPG" width="320" /></a></div>
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Rover Stroller-Heal padding</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimHTNdsyCdyAK_NEH9JMhq6Zuu1ouCuoD_ZK_FbH_L5oj5BPtLPNB7Thyphenhyphenu7SN6OJSs0zH7l2449dAO7cOehTRir0UnOQKsToPqljsWEG-rSjcjeS2HSFpFur-Sx-gVxv7NnFFkLQUr2K0/s1600/2-8-2012+91+Rover+Stroller-Padding+for+heals.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimHTNdsyCdyAK_NEH9JMhq6Zuu1ouCuoD_ZK_FbH_L5oj5BPtLPNB7Thyphenhyphenu7SN6OJSs0zH7l2449dAO7cOehTRir0UnOQKsToPqljsWEG-rSjcjeS2HSFpFur-Sx-gVxv7NnFFkLQUr2K0/s320/2-8-2012+91+Rover+Stroller-Padding+for+heals.JPG" width="240" /></a></div>
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Rover Stroller-just chill'in 1</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMtKz35VdbK-z8lzGVUmapc6vfgL50i8pvLUxpThkSLAqjI5oC6okuTRmDoSlSn5D-yh55elZDLbhMAv39fx4tfvDYsdq4za0lFAogYt0RonhXl72hhU_4gw4UKmbkPcNJnCrDXRxqJ1U/s1600/2-8-2012+93+Rover+Stroller-just+chill'in+1.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMtKz35VdbK-z8lzGVUmapc6vfgL50i8pvLUxpThkSLAqjI5oC6okuTRmDoSlSn5D-yh55elZDLbhMAv39fx4tfvDYsdq4za0lFAogYt0RonhXl72hhU_4gw4UKmbkPcNJnCrDXRxqJ1U/s320/2-8-2012+93+Rover+Stroller-just+chill'in+1.JPG" width="240" /></a></div>
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Rover Stroller-just a chill'in 2</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqC_N4sb9C_ryVcIh1ZpRshHdi6gf1Mfd_SZBasQogYCqkFKaHQwxYnd0oaGhvpmZb_I-9NHjP4yhOQ4ev-nr6GBiumXDH-T1KHx07Jz7FXR6eGFPTK65kHFaQxC5DlDogFqdXy-boGg8/s1600/2-8-2012+94+Rover+Stroller-just+a+chill'in+2.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqC_N4sb9C_ryVcIh1ZpRshHdi6gf1Mfd_SZBasQogYCqkFKaHQwxYnd0oaGhvpmZb_I-9NHjP4yhOQ4ev-nr6GBiumXDH-T1KHx07Jz7FXR6eGFPTK65kHFaQxC5DlDogFqdXy-boGg8/s320/2-8-2012+94+Rover+Stroller-just+a+chill'in+2.JPG" width="240" /></a></div>
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Rover Stroller-just a spaz'in</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhk6x09d4gP2TzVzzciPwihoyDPQBY6iLJ7ngm28M9BaVi47vgLvO0lnwABqpKEOmQfDvHQZaZVss6PtSq0_UHF8hnguHzT1-A5Ydt-It5Kms68c_mssydltxKav2SFzj94j1O4-GrUX_Y/s1600/2-8-2012+95+Rover+Stroller-just+a+spaz'in.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhk6x09d4gP2TzVzzciPwihoyDPQBY6iLJ7ngm28M9BaVi47vgLvO0lnwABqpKEOmQfDvHQZaZVss6PtSq0_UHF8hnguHzT1-A5Ydt-It5Kms68c_mssydltxKav2SFzj94j1O4-GrUX_Y/s320/2-8-2012+95+Rover+Stroller-just+a+spaz'in.JPG" width="240" /></a></div>
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Rover Stroller-Just a chill'in watching Sponge Bob</div>
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Rover Stroller-Done</div>
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Rover stroller-Safty buckle on red chair 1</div>
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(this buckle is to secure the red chair to the frame)</div>
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Rover stroller-Safty buckle on red chair 2</div>
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<br />Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-756792782197118741.post-8578871802825005662012-02-06T00:34:00.002-06:002012-02-06T00:42:01.340-06:00Life has taken a turn….<span style="font-size: x-small;"><br /></span><br />
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</div>
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<span style="font-size: x-small;">As
most of you know we “were” planning on moving to Texas as soon as school was
out….well that has changed….things just didn't work out for this year....we’re
hopeful we’ll get to go next year.</span></div>
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<span style="font-size: x-small;"><o:p></o:p></span></div>
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<span style="font-size: x-small;"><br /></span></div>
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<span style="font-size: x-small;">Since
we have to stay, I will just continue to go down the path that I started here….as much as I would rather move to be by Dani and my little buddy
Ashley (and his special doctors)….I will say, I'm proud; I have worked my butt
off trying to get all these services here that Corbin is eligible for and after
6 ½ years I finally did it!!!!<o:p></o:p></span></div>
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<span style="font-size: x-small;"><br /></span></div>
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<span style="font-size: x-small;">Here's
a preview of what's going to be happening……. <o:p></o:p></span></div>
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<span style="font-size: x-small;"><u><b>Therapy:</b></u> </span></div>
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<span style="font-size: x-small;">In November, Corb was
denied for more therapy sessions….but as far as the company understood, in our
state you get 30 sessions each year, without a Prior Authorization….so the
speech therapist came on Thursday January 5<sup>th</sup> and did her report and
the company billed it right away….well on Monday the 9<sup>th</sup> while we
were out doing errands the occupational therapist called asking if we were
gonna be home for her appointment….she was waiting outside….needless to say, I
guess he got approved for more sessions lol<o:p></o:p></span></div>
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<u><span style="font-size: x-small;"><b>Waiver/request form</b>: </span></u></div>
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<span style="font-size: x-small;">I'm hopeful that I'll be
able to help change our screwed up system….I created a form that will make it
easier for the doctors or therapists to request items for the waiver to
cover….Corbin's worker sent the forms into the state to see what they
think….she’s gonna set up an appointment with me soon, so we can go over the
forms to see if state had decided it needed something more....I'm more then happy to tweak it to make sure
it covers everything that’s requires. </span></div>
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<span style="font-family: Calibri, sans-serif;"><span style="line-height: 18px;"><span style="font-size: x-small;">So far we've gotten a few things that were written up the old fashion way</span>: </span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjT73urSOMYd1YcLZZ9BW4j3cezh5tUJ3yn3iGtH2iAhkpVj2FFTfOPmsY0ugvlS0PGcoIOdMbirA0WB87-qcKCVJdgn51OHhvptKKAteTG-YbUgWIewWEuOkYfqJvTb9NDH7ii0Bi1wts/s1600/Switches+and+things.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="181" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjT73urSOMYd1YcLZZ9BW4j3cezh5tUJ3yn3iGtH2iAhkpVj2FFTfOPmsY0ugvlS0PGcoIOdMbirA0WB87-qcKCVJdgn51OHhvptKKAteTG-YbUgWIewWEuOkYfqJvTb9NDH7ii0Bi1wts/s200/Switches+and+things.JPG" width="200" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiM0A-AHpUCVntljMqx23cUbsHEJuhQChzIpYHtKpcYKyTECNgr1qsiG36dp_8FjjFKxWOpwlUDfiwPNsQZz8ZAsOMuSQKMucEdyL33IiFvTiKt3FGdY5mjz39eMgIaCZsv6rDU7k_HDto/s1600/Books.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="115" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiM0A-AHpUCVntljMqx23cUbsHEJuhQChzIpYHtKpcYKyTECNgr1qsiG36dp_8FjjFKxWOpwlUDfiwPNsQZz8ZAsOMuSQKMucEdyL33IiFvTiKt3FGdY5mjz39eMgIaCZsv6rDU7k_HDto/s200/Books.JPG" width="200" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjphoi-ePf6nD6g7GyKC5EJPn0AP4Oq0LhIeHZZWICoPf5TYyAc_OzWqfA3rWOhndHcVftwy0-5QMC5aTm5GzZ1breq3V7nxpR8a0j2TdlhnE014S9Ez5xzSjGqL_0CUXGmTnWDzw_50-c/s1600/switch+toys.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="176" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjphoi-ePf6nD6g7GyKC5EJPn0AP4Oq0LhIeHZZWICoPf5TYyAc_OzWqfA3rWOhndHcVftwy0-5QMC5aTm5GzZ1breq3V7nxpR8a0j2TdlhnE014S9Ez5xzSjGqL_0CUXGmTnWDzw_50-c/s200/switch+toys.JPG" width="200" /></a></div>
<span style="font-size: x-small;">Some stuff we’re
still waiting for approval:</span><br />
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<span style="font-family: Calibri, sans-serif; font-size: small;"><span style="line-height: 115%;"><b><u><br /></u></b></span></span><br />
<span style="font-family: Calibri, sans-serif;"><span style="font-size: x-small; line-height: 115%;"><b><u>Asking the therapist to request items for Corb, is like pulling teeth:</u></b></span></span><br />
<span style="font-size: x-small;"><span style="font-family: Calibri, sans-serif;"><span style="line-height: 115%;">I
had talked to one of the therapists and told her straight up that whatever she </span></span><span style="font-family: Calibri, sans-serif;"><span style="line-height: 18px;">didn't</span></span><span style="font-family: Calibri, sans-serif;"><span style="line-height: 115%;"> feel comfortable writing for….I’d just ask the Doc to do it (you should
have seen the dumbfounded look on her face, I do what my son needs, sorry if it
hurt your feelings). The new Doc was more than happy to sign (my forms) for
just about everything I asked her too....like:</span></span></span><br />
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<b><span style="font-size: x-small;"><u>Medicaid items: </u></span></b></div>
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<span style="font-size: x-small;">We’re waiting for the seating and mobility rep to call about his walker
and stroller</span></div>
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<span style="font-size: x-small;">also the new Doc wrote a script for Corb to have a custom wheelchair seating eval.
</span></div>
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<u><span style="font-size: x-small;"><b>PCW:</b> </span></u></div>
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<span style="font-size: x-small;">Many
many months ago I found a new PCW company.…well for the longest time, just
about every week I was checking in with them (with no one ever calling me
back), because they still weren't able to get Corbin approved for any hours….I
took it upon myself to get them 2 hours a day, 7 days a week from the Waiver
until the PA paper work was completed….I talked to the scheduler and I asked
her to get it fully staffed first, before we make a start date, NEVER heard
from them again….well before I picked that company, I tried to get into a
different company but they said it was way too much work with us moving away
anyway….well since we’re not going I called to see if they would consider it
now….the intake nurse was here, everything is set to go….as soon as Sarah heals
from Gallbladder surgery she can start.<o:p></o:p></span></div>
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<span style="font-size: x-small;"><br /></span></div>
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<b><span style="font-size: x-small;"><u>Dynavox EyeMax: </u></span></b></div>
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<span style="font-size: x-small;">I've always wanted a Dynavox EyeMax for my sweet Corbin Lee, but
because we've never had any consistent therapists, there wasn't ever anyone to
write the reports for insurance....well since we got approved for the 30
sessions that we had hoped for, we gave the go ahead for the device to be sent
to us….we had ordered one and put it on hold, hopeful he wouldn't get
denied….we are all so excited, it's so awesome we will get the 4-week trial
that our insurance will cover….the REP was here on Tuesday Jan 17<sup>th</sup>
to help me and the speech therapist get it set up</span><span style="font-size: small;"><o:p></o:p></span></div>
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<span style="font-size: x-small;">1 week into the
trial….sadly, we’ve “had” to come to realize and accept that this device isn’t
right for Corbin and personally, it’s actually not what I thought it was…..I
guess I was always under the assumption that it was more of an interactive
device….something he could pick and make choices from and something fun would
pop up, or we could play with him, with what he chose….well, the rep said don’t
even use the word “choices” in the report….the device has to use it for communication only,
example….Mom my show is over, then he’d have to go to the next page to say,
what one he wants all –by himself- </span></div>
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<b><span style="font-size: x-small;"><u>Dystonia/New Doc:</u><o:p></o:p></span></b></div>
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<span style="font-size: x-small;">Corbin was diagnosed with
Secondary Dystonia in Dec 2010…<span style="color: #999999;">.<i>Dystonia
is a neurological movement disorder, in which sustained muscle contractions
cause twisting and repetitive movements or abnormal postures. The disorder may
be hereditary or caused by other factors such as birth-related or other
physical trauma, infection, poisoning or reaction to pharmaceutical drugs,
particularly neuroleptics. Treatment is difficult and has been limited to
minimizing the symptoms of the disorder, since there is no cure available. </i></span>Because
we were going to be moving to Texas, I was going to just wait to discuss
treatment options with the new doctors when we got down there, but since we
can't go yet, I decided since I really felt a connection with the new Doc at Corb’s PMNR clinic, that I would asked her if she has ever dealt with treating
patients with Dystonia, and she has YEAH! <o:p></o:p></span></div>
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<span style="font-size: x-small;"><br /></span></div>
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<span style="font-size: x-small;">We talked about the fact
that he has tried all three of the main medications but I asked her, if since
Corb was very young when we tried Sinemet, did she think the side effect of the
vomiting might be different now that he’s bigger, well she was happy to try….I
planed to start it on Sat Jan 28th but on Fri Jan 29th he had a very bad seizure
which ended in him having to be intubated….I’ve made the decision that I’m not
starting him on the Sinemet at all and I’m weaning him back off the seizure
medication that the Neuro started him on....and I'm just bringing him back to Mayo. <o:p></o:p></span></div>
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<span style="font-size: x-small;"><o:p> </o:p> </span></div>
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<b><span style="font-size: x-small;"><u>Dystonia medications:</u><o:p></o:p></span></b></div>
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<span style="font-size: x-small;">While at Mayo in Dec 2010
the Doc’s had put Corb on the last possible Dystonia treatment before Deep Brain
Stimulation, it’s a medication called Artane; you HAVE to try it to move
forward, well….<o:p></o:p></span></div>
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<span style="font-size: x-small;"><br /></span></div>
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<span style="font-size: x-small;"><b><u>Seizures:</u></b> <o:p></o:p></span></div>
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<span style="font-size: x-small;">Corbin had only had one
seizure ever and that was during the accident; until May 2011, then again Dec
2011 and then the one on Fri Jan 2012….Dani brought it to my attention that
Corb started having these seizure approx. 2 months after discontinuing the
Artane, there’s no way to know for sure and no way to prove it but I’m feeling very
angry, guilty, and sad for my baby….I do everything in my power to help him and
sometimes it gets screwed up even worse.<o:p></o:p></span></div>
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<span style="font-size: x-small;"><br /></span></div>
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<b><span style="font-size: x-small;"><u>DBS (deep brain stimulation):</u></span></b></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3miuHUte3uSbjX1LlVLp-cdbmrn6tkSvlMhJ7anXEYy0U00T9U0QpF4nnMqQilVji87bZr9laXPgORQR9FjMZ-rfD_mle-Zv08u-D7b8yIstn6UBz2sZxN4X3z4t3tlrBT1n2OjmzyBM/s1600/DBS.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="177" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3miuHUte3uSbjX1LlVLp-cdbmrn6tkSvlMhJ7anXEYy0U00T9U0QpF4nnMqQilVji87bZr9laXPgORQR9FjMZ-rfD_mle-Zv08u-D7b8yIstn6UBz2sZxN4X3z4t3tlrBT1n2OjmzyBM/s200/DBS.jpg" width="200" /></a></div>
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<span style="font-size: x-small;">Bill and I, through all my
bawling had a heart to heart and he asked me if I was really considering
bringing Corb back to Mayo to farther discuss the DBS and I said yes I am and
he said maybe it “is” time to think about it….my heart dropped, I can’t even
start to express how much that meant to me in that very moment….I have felt
very alone in this journey and it’s nice to have support….I love you Honey<o:p></o:p></span></div>
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<span style="font-size: x-small;"><br /></span></div>
<div class="MsoNoSpacing" style="text-align: left;">
<span style="font-size: x-small;">I already called Mayo and
I’m having them send me the list of motels that give discounts to Mayo patients
(we will try to get into the Ronald McDonald house, but that’s never a guarantee)
so that brings me to my next topic….<b><o:p></o:p></b></span></div>
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<span style="font-size: x-small;"><br /></span></div>
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<b><span style="font-size: x-small;"><u>Small fundraiser: </u><o:p></o:p></span></b></div>
<div class="MsoNoSpacing" style="text-align: left;">
<span style="font-size: x-small;">I wouldn’t even know where
to start but I’m considering looking to some form of small fundraiser so if we
do decide to do the DBS we’ll be able to afford staying out of town for many days and all the travel expenses in general….if anyone has any ideas please let me know....corbinleeproject@yahoo.com</span></div>
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<span style="font-size: x-small;"><br /></span></div>
<div class="MsoNoSpacing" style="text-align: left;">
<span style="font-size: x-small;">Thought of a cute name....<span style="color: red;"> </span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoIWoY1pxP-16wSbd-fjRxJrIc8SsBuAF_Z_DWPp4_nqNcmHZW_rz6URpApX5-JMsG5amo3m5rFd6iOohz8UzphS6Fn1e8MBWRdE3eErlCkjn-1cyqEEVv_A6V7wsKBy_HwhahOZkFJ1c/s1600/Dollars+for+Dystonia.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="114" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoIWoY1pxP-16wSbd-fjRxJrIc8SsBuAF_Z_DWPp4_nqNcmHZW_rz6URpApX5-JMsG5amo3m5rFd6iOohz8UzphS6Fn1e8MBWRdE3eErlCkjn-1cyqEEVv_A6V7wsKBy_HwhahOZkFJ1c/s320/Dollars+for+Dystonia.jpg" width="320" /></a></div>
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<b><span style="font-size: 12pt;"><br /></span></b></div>
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<b><u><span style="font-size: x-small;">Something neat to end with:</span></u></b></div>
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<div class="MsoNormal" style="margin-bottom: 0.0001pt;">
<span style="font-size: x-small;">We had Chinese for supper on super bowl Sunday….both me and Corb’s
Fortune Cookies had the same Fortunes (it’s not the right direction), it’s
kinda creepy....</span><span style="font-size: small;"><o:p></o:p></span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhovUc1XcdjDxAhXUDz-D2FLb4NdhZkRAwww6tFIatdYE9Z8m76pxCExr6rR5gOXkJa-ZHBxExQ7ntwXNoVvqKwiRSynyzD1D_9ePfo_xwQ7RPzQ94dz_BWurxEjR7rtLWQPIOTPRvqj2s/s1600/Fortune+cookies.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="244" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhovUc1XcdjDxAhXUDz-D2FLb4NdhZkRAwww6tFIatdYE9Z8m76pxCExr6rR5gOXkJa-ZHBxExQ7ntwXNoVvqKwiRSynyzD1D_9ePfo_xwQ7RPzQ94dz_BWurxEjR7rtLWQPIOTPRvqj2s/s320/Fortune+cookies.JPG" width="320" /></a></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-2688288473143013272011-07-26T13:55:00.002-05:002011-07-26T14:10:39.915-05:00FaceBook....KindnessI wanted to remind everyone that I update on <a href="http://www.facebook.com/CorbinAndCaradie">FaceBook</a> as often as I can, sometimes all throughout the day.<br /><br />We got the most amazing mail today....Mr. and Mrs. P made a WONDERFUL donation to Corbin....THANK YOU so very much!<br /><br />I'm working on picking up a wheelchair tonight for a person in need.<br /><br />Keep-Up-The-KindnessUnknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-81097399549010874832011-07-25T15:29:00.002-05:002011-07-25T15:35:35.230-05:00Video of News Cast....Gilbert MN<a href="http://www.youtube.com/watch?v=l6gjK896lPg">http://www.youtube.com/watch?v=l6gjK896lPg</a> <br /><br /><br />I'm looking for someone traveling to Gilbert MN in the next weeks or so....to deliver a wheelchair to a daughter of an 85yr old woman.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-90971517352243248082011-07-24T12:24:00.006-05:002011-07-24T17:26:01.787-05:00Northland's NewsCenterCorbin and our family will be on the news tonight and tomorrow morning, the story is about the kindness of the people in our community, as soon as people read in the eh? column, calls and e-mails started coming in, of people wanting to donate their wheelchair to Corbin.<br /><br />Here's the reporter that interviewed us, she spent a lot of time helping us tell Corbin's story and taking down the information about....Donate a wheelchair or Need a wheelchair....we want to thank Ivory for all of her time.<br /><br /><p><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5632975673945556802" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNXgTI3SBRH6qgwbsVdxahuEIovc_7NP6rAbRkNC46VUsktn3F9oImmn9w3_ZQ0HvUsrtxkXXt5IJJoRq_UTpxO4ATwncSaKTedus5p-fZow0HajV7aWlJ8jxepE7UO4-aA5eN5Q0nKM8/s320/100_5107.jpg" /> Corbin's website.... <a href="http://www.corbinleeproject.com/">http://www.corbinleeproject.com/</a><br />Photo amd videos.... <a href="http://www.dropshots.com/BabyCorbin">www.dropshots.com/BabyCorbin</a> Caringbridge.... <a href="http://www.caringbridge.org/visit/babycorbin">www.caringbridge.org/visit/babycorbin</a> (I started journaling there a few days after his accident, until I started his website)</p><br /><p>I update on Corbin's FaceBook more often then here....Feel free to friend us.... <a href="http://www.facebook.com/CorbinAndCaradie">http://www.facebook.com/CorbinAndCaradie</a> </p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-36231520862334603792011-07-23T13:19:00.002-05:002011-07-23T13:23:58.678-05:00Donations<span style="font-size:180%;">Check out Corbin's new </span><a href="http://www.corbinleeproject.com/template_f6.html"><span style="font-size:180%;">Donations page</span></a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-48272933732997896802011-07-22T10:11:00.004-05:002011-07-22T10:17:49.035-05:00Donate to others....Corbin's websitesWe would like to thank everyone for all the kindness….because we found a wheelchair that will work for Corbin, we have been asking potential wheelchair donors if they would like to leave us their name and number and if someone contacts us needing a wheelchair, we then could contact them back, with the "person in need’s" information.<br /><br />For any information please e-mail us.... <a href="mailto:corbinleeproject@yahoo.com">corbinleeproject@yahoo.com</a><br /><br />Feel free to check out Corbin's websites<br /><a href="http://www.corbinleeproject.com/">www.corbinleeproject.com</a><br />Journal from the beginning <a href="http://www.caringbridge.org/visit/babycorbin">www.caringbridge.org/visit/babycorbin</a><br />Many videos and pictures <a href="http://www.dropshots.com/BabyCorbin">www.dropshots.com/BabyCorbin</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-20289247781960689332011-07-21T17:36:00.005-05:002011-07-21T17:49:40.287-05:00Wheelchair pics<div align="center">Corbin in his wheelchair.<img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 181px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631939460578043970" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWzk62jStBCjvVYoXoXvDQ0ADEYVjkjTVbhP8ZbXMZ3fwMANahgDA4mDJ2hyu_DD1l6UlCGS0lTRabVQsZiBO4sflPugwkGRJEUmHJQY7OqHQY1oY2sZJYHrht-egosO5-hMzFk29RW5Y/s320/Corbin+in+his+wheelchair.jpg" /></div><br /><p align="center">Corbin in his donated wheelchair (thank you Judy and Gordon)</p><br /><p><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631939466032659570" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHneprdiM8ffNHPSCibycrg1sq8JyUVvVh_CcD06EnXEVcqAhXTdzHN-Q-ruDQGkSLXcwND2jpaNKjc_Wz9ojbJoaEKrer0Lo6PNJ-VgmkuS9M8mAQspfeMjsV77YHyAfaiHGhwSMZnN4/s320/Donated+wheelchair.jpg" /></p><br /><p align="center">Just a close-up.<img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 253px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631939472775346274" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8pPBBPYuwfFGZ3CJF22F-35ZMe8CTJODZ9EJT_7vme1qQDTfj01aAsWkyi-fEKAZBWI2J_20g1vULj-HXfc51H9uUMBSLE1KeQBso5viWUlfBrxddAIG2ESHzfoHfFdVWY27feX_mUUo/s320/Close+up.jpg" /></p><br /><p>Another wheelchair was donated to us (thank you, Rev. Barb), we will find someone in need and donate it to them.</p><br /><p>Corbin's family</p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-16360501243784733862011-07-21T16:31:00.002-05:002011-07-21T16:33:18.074-05:00Old and Very usedI need to explain the whole story….Corbin still has his personal wheelchair; the one stolen was just an old normal folding wheelchair, we used it to set Corbin’s feeding chair in, to move him through the house and to take him outside. This style of wheelchair was a perfect fit for his feeding chair.<br /><br />We have received many calls from people offering to help; a very nice couple donated a wheelchair that is a perfect fit, we have had many wanting to donate their wheelchairs, we have also had people offering to purchase Corbin a brand new wheelchair, another lady contacted me offering to donate all of her son’s equipment, we even had sisters offering to hold a fundraiser….with all the wonderful donations, we need a shed to hold the equipment and his daily care supplies in and then we can lock up everything.<br /><br />We are so touched and honored that so many people want to help.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-62109444484922381752011-07-20T23:44:00.008-05:002011-07-21T00:46:43.986-05:00There’s a lot been going onTo start off we had a devastating blow….our Hard Drive crashed and I lost 7yrs of hard work and dedication….I’ve cried many tears over this.<br /><br /><strong>Now to the good stuff<br /></strong>I have been working on getting equipment/stuff with Corb’s Waiver (now that we have therapists things should go a little smoother). Some of the things are….a rover/stroller, gait trainer, a <a href="http://www.dynavoxtech.com/products/eyemax/">Dynavox eye gaze system</a>, all sorts of switch toys and a few switches, books and maybe convert our van (that aint looking to promising though)<br /><br /><br /><strong>In-home Therapy<br /></strong>Meeting new people is very hard for me, I’m always home and for the most part I’m alone so I don’t have a whole lot of interaction with people *blushing* but….it’s been a few weeks with OT, PT and ST and I think things are going great (amazing story at the end) the therapists are very hopeful that they will get more then 10wks….me not so much, when ya been shot down as many times as I have…it’s hard to have much faith that Medicaid will approve more time….Corb is doing a great job and we’ll prove it!!!!<br /><br /><strong>Not himself<br /></strong>Corbin is very loose, he’s still got movements that take over but he’s so very calm….sadly we’ve lost his pizazz, he’s just not himself :-( I’ll take the loose and calm but the Blah has gotta go! (I can't get videos to upload here....<a href="http://www.dropshots.com/BabyCorbin#date/2011-07-18/17:56:54">DropShots</a>)<br /><br /><strong>During therapy</strong><br />Corb has been doing things I never thought possible, partly because he’s soooo Loose and Blah/Calm but….he’s reaching for things, sometimes on accident but a lot more are on purpose, he’s sitting nicely, he’s purposefully choosing more and more things, his finding what we ask him to find, is so fast now (even just a year ago his reaction time was much slower). All three therapists have got me cry’in, they all have said how much amazing potential he has!<br /><br /><strong>Cute story about his comprehension….</strong>he now knows that burps and farts are funny<br /><br /><strong>Doc appt<br /></strong>Some of you may remember Corb’s mouth was bleeding awhile back, well got him into the dentist and then the oral surgeon….next time he has Botox they will just put him all the way under (at the hospital) then they will do the Botox and the tooth extraction….I was so excited when the Oral Doc said they can do both at the same time….I’ll way take one sedation versus two any day!<br /><br /><br /><br /><p><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631665588562897266" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQpCaxj0zAkghY-kZ2VLjb4rUsGrvKbrrLTDAHsgHRvY3O7-q1_tXnJ3nDAlBtnnAXjpIGmO-Froj_KFMOLCqJhP4NWsNaJLasPT_wE-n6IwH_kta8MDDqO_IeTQHw-ghdMkxBChDY6j4/s320/July+16+Baby+tooth+wont+fall+out.jpg" /> <strong>Texa$$<br /></strong>With the acceptation of Noah we are all still thinking about moving to TX….(I kinda got cold feet)….never even been anywhere….just picking up and moving is a scary plan LOL<br /><br /><strong>Baclofen pump (working or not working)<br /></strong>As ya all know, Corb is a very tight, ridge, hyper kind of kid….we were questioning if the pump is even working so at his next refill, the Doc is going to have to give him an extra pokie, to do a catheter port access study….we have been talking about decreasing his dose to see if it does anything but…….now with him being so super loose I’m not sure what to think….maybe it wasn’t working, then at the last refill, it started working….I don’t know!<br /><br /><strong>Now hold on tight, you’ll never believe this<br /></strong>Corbin’s outside wheelchair (it was a very old beat up one) was stolen right out of our back yard, also at least one bike (we have a pile lol)….well I e-mailed the Duluth News Tribune asking how much it would cost to place an ad, someone e-mailed me a price but later today someone else e-mailed me asking if they could put an ad in the “eh? Column”<br /><br /><strong>Extras</strong><br /><br /><strong>Mr. Blue….</strong>I was messing around with my photo editor and with the right setting his eyes are an incredible shade of blue (he doesn't have a black eye, he just has dark circles) <img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631669255776065570" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyzQWgps7MefI6j-d4idQYW_QzpdJahOogI466m4swtLAxFfFiTJ_ayeuIyOxOkLFRwhXN3nO4jVSzr2FlN0CR-307Ej_Ew86OGLU30Pkks8cC6XUEahLboOIYoMPlucc5EpCXC49KnaU/s320/July+16+What+a+color.jpg" /></p><br /><strong>New toy rack....</strong> (I can't get videos to upload here....<a href="http://www.dropshots.com/BabyCorbin#date/2011-07-18/17:58:04">DropShots</a>)<br /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631667612892220962" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIRx2gbVvlvJrJOKXjg0cGYJ3PaAJfX-y6f4oFrENPJc81HYUgwRv3O4J4WtvZ65m5WsItoV6HSZaiCth3EgUN044WPANaLyEejRbfs67zm4-j5I018ZT0-QhyphenhyphenC__ThLcd23w7_DAh8Js/s320/July+18+Smudge+on+his+tummy.jpg" /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631667606842208242" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9xeV0xji3CCPcPdXkYRkgonEB2ZPdlHVJ6j13bWykYds-XSsa3EGsHO-5kHni074q7J0UuVomBi8t4Ejltp8Zl0PZbZwNybDrc7AeX1i67PK0FGgu7luvirk3eBTEHoA9spCarGdI0Zg/s320/July+18+Touching+smudge.jpg" /><br /><strong>We have unique pets....</strong>Oliver (cat) and Jak (dog) like Smudge and Coco (guinea pigs) <img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631677307125157058" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm3TGmCg-hrMxQzrXUPs1MloF6DGs7WdXQTHZQNYH-xFlJlZUKA44HwMJs3XTi3MyytLEZOgahVZOmXWdT_mxScQEgbpdA7klE7p6nafC7lqI72GPH0gPblR3TjPSizuTGBQU8f69UAUE/s320/July+19+Oliver%252C+Coco%252C+Jak.jpg" /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5631671950979213506" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPn0PPRHQ9J5Gp_UzitTR2Ld5SN1oE7eH00NDbOCuGwAl3G0gCuEExteoW9xkg0o0D3as2-RCw_eOLdy7XcQPBj0bNoJ1OflYmF3qN7anUQXdo2FGefLn27rQjLv6M6xns7KgtpxTZdC0/s320/July+19+Smudge%252C+Oliver%252C+Coco%252C+Jak.jpg" /> <br /><p><strong>Corbin’s aides has a new puppy….</strong>Meet Sally<strong> </strong>(again I can't get videos to upload here....<a href="http://www.dropshots.com/BabyCorbin#date/2011-07-18/17:33:53">DropShots</a>) </p><br /><strong>Ok on to the amazing story</strong><br />Corbin Lee sat on a pretend red horsy (bolster) very nicely, he pushed backwards some but….most of the time he was able to correct himself and here’s the most amazing part….he was even reaching for the switch at the same time.<br /><br />I love him more then words can explain!Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-58952197864923639412011-06-29T19:16:00.002-05:002011-06-29T19:23:00.162-05:00Corbin Lee's way to reach to activate a switchThis video shows how Corbin can actually use his own arm to get the switch (his way)....I LOVE doing things with him where he can succeed!<br /><br /><a href="http://www.dropshots.com/BabyCorbin#date/2011-06-29/18:18:04">DropShots</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-756792782197118741.post-10238500893885378162011-06-18T22:25:00.006-05:002011-06-18T23:03:15.619-05:00Me and Corb's aquarium trip<p align="left">Corbin and I went on a trip to the aquarium all by ourselves, Austin isn't ever home, Daddy is super busy with finals and Noah just didn't feel like going. </p><br /><p align="left">We had tons of fun hanging out together</p><br /><p align="center">This is actually the last picture....he started complaining so we headed out.<img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619770410980183490" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_pWgZZZbOjxOirEeIpEuDHjtCFxnHH_iyJGMvRQ7ASRN9Hje6jLuPO4GiissjWkfJvyBlooRkVCgpTMefUeN87b3ru4zPAaS-pTnO3B1HYJh_49Se61mc4rS7QcOiCPsyY6PhlWpiP9c/s320/100_4895.jpg" /></p><br /><br /><p align="center">He was shocked when I told him to turn to look at the bear.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgM2wpKY7B-AIoAw1zA2ZlhurKMtqANjR1VnG4b5M6Wfx_9HRidWm-MPD9EEuktrbqX-To0wZvmMGSRj6c3IP_knktJSmeDqjjPKYXULL15zOFIhUrA-lwv8C8U-8a_28fYH9fa3ythExw/s1600/100_4897.jpg"></p><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619770412476552402" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgM2wpKY7B-AIoAw1zA2ZlhurKMtqANjR1VnG4b5M6Wfx_9HRidWm-MPD9EEuktrbqX-To0wZvmMGSRj6c3IP_knktJSmeDqjjPKYXULL15zOFIhUrA-lwv8C8U-8a_28fYH9fa3ythExw/s320/100_4897.jpg" /><br /><br /><p align="center"></a>Watching the kids instead of looking at me lol</p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgA_LtE9XIo5V6rMck55V_Ly1FbNxnn44hLaX3mOtf9CH7QwIeyMwfIp1i2b5q1lApkPHXDPcHkk08GCEF7rMlNTex3EYLkPUDlKK5-xZnuI6VYbNSiKvOdwP2ObFRxO2irRDRWmSFalNA/s1600/100_4893.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 278px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619770398449966578" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgA_LtE9XIo5V6rMck55V_Ly1FbNxnn44hLaX3mOtf9CH7QwIeyMwfIp1i2b5q1lApkPHXDPcHkk08GCEF7rMlNTex3EYLkPUDlKK5-xZnuI6VYbNSiKvOdwP2ObFRxO2irRDRWmSFalNA/s320/100_4893.jpg" /><br /><br /><p align="center"></a>Brown duck<br /></p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCaXhIPYKlNObWe6gryKduazfkvTbq47QtBIkSlEBvNll-Zx0xbbGFsE2LEEf84A5PEcDbHry9nced8iYRaY7_M-V0k6jdcb_WlNZPOl5NgSX1kYyt0dB_A4kDWEUx6PfxDBHa9Mi8wXU/s1600/100_4887.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619770387380325282" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCaXhIPYKlNObWe6gryKduazfkvTbq47QtBIkSlEBvNll-Zx0xbbGFsE2LEEf84A5PEcDbHry9nced8iYRaY7_M-V0k6jdcb_WlNZPOl5NgSX1kYyt0dB_A4kDWEUx6PfxDBHa9Mi8wXU/s320/100_4887.jpg" /><br /><br /><p align="center"></a>Diving duck<br /></p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjj5RYbM3_imVze0GUF_JHYmrnPS45GEt4l4nHNylxXFS0rkTCvj4DyWZwGwiZfcKEIaTOeoAEYwoabjKhChAqidXTz2BbI9xmYw7MRPVYSabr4QXkOntc5vURhLptODq_lT8XZYG7_8V4/s1600/100_4880.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619770376951331106" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjj5RYbM3_imVze0GUF_JHYmrnPS45GEt4l4nHNylxXFS0rkTCvj4DyWZwGwiZfcKEIaTOeoAEYwoabjKhChAqidXTz2BbI9xmYw7MRPVYSabr4QXkOntc5vURhLptODq_lT8XZYG7_8V4/s320/100_4880.jpg" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxMw9JlZanXrVawJw3OAv7kZtJY3aMkLu7skTmIO1yZJsxqjqhUHcdLKhSdWEn6m96HLJH3zSkCkmW1h7ApPHQV7yA-3rx1Sqrk9nkbfYXLI8966gFmDkLj55fpk0gmpAWqacNfmdQhYw/s1600/100_4876.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619769610269705298" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxMw9JlZanXrVawJw3OAv7kZtJY3aMkLu7skTmIO1yZJsxqjqhUHcdLKhSdWEn6m96HLJH3zSkCkmW1h7ApPHQV7yA-3rx1Sqrk9nkbfYXLI8966gFmDkLj55fpk0gmpAWqacNfmdQhYw/s320/100_4876.jpg" /><br /><br /><p align="center"></a>Very large moose<br /></p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPYGP4Sgu5OEtD_UT0Os2NEzn4HanIiWMuA2PY00UF7nU-xsx_51Mu_FOO3d3KwH_t04TFHIVy2TYfh9q_OB6E8oG_0fRlimEl0BErK87t4VVzDvBqVj-I2mjZWYDvpbz9wi0jcp15ycg/s1600/100_4873.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 240px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619769602069984898" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPYGP4Sgu5OEtD_UT0Os2NEzn4HanIiWMuA2PY00UF7nU-xsx_51Mu_FOO3d3KwH_t04TFHIVy2TYfh9q_OB6E8oG_0fRlimEl0BErK87t4VVzDvBqVj-I2mjZWYDvpbz9wi0jcp15ycg/s320/100_4873.jpg" /><br /><br /><p align="center"></a>He did amazing, he was even tracking the fish.<br /></p><br /><br /><p align="left"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619769571986808002" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjELx-ev9lXb0xff_nFoRl7EyPNW5InxmTESfGO2ISkCPOnA9QFhjFxs2kWYes-8DGegCUavtpWdS5bf6wWU2DZvK6oueTrPFJu0zVFWj43Pfy85s96kAJdfoHQyxyF4nGGeg37TObchpk/s320/100_4867.jpg" /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhucuhHdf5cX9f0B3B53uWaOhM_SDQoyTCrLOjJePKeiY-jPHO8H1YnApcdIkz1y3_zyWfgug0AyuMF9qNeXhF5ILHQFkklpEHADp2lxsCHi-x7Sc8idv7chWyPRo8dEmiI844dJeBjk_0/s1600/100_4869.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619769590620196594" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhucuhHdf5cX9f0B3B53uWaOhM_SDQoyTCrLOjJePKeiY-jPHO8H1YnApcdIkz1y3_zyWfgug0AyuMF9qNeXhF5ILHQFkklpEHADp2lxsCHi-x7Sc8idv7chWyPRo8dEmiI844dJeBjk_0/s320/100_4869.jpg" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNrMTLEkDuIoh0j16CZhMyAIXn3Gp2BTpKtLeFEnPVZBIIgbutZ9X9hOsk4Nfm6nrMYzGsrj8J12qT45rfMglTxlZTm3F4UkoD1ZnSf1KQNpG50OPw7rEXZF-HJQWV746xLTNH1U2nJvI/s1600/100_4868.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 240px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5619769576048853842" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNrMTLEkDuIoh0j16CZhMyAIXn3Gp2BTpKtLeFEnPVZBIIgbutZ9X9hOsk4Nfm6nrMYzGsrj8J12qT45rfMglTxlZTm3F4UkoD1ZnSf1KQNpG50OPw7rEXZF-HJQWV746xLTNH1U2nJvI/s320/100_4868.jpg" /></a> This trip was so much better then the first one....I think now that I know why he's always so stressed out it's easier to keep him calm....I think being off the Dystonia medication has made more improvements then being on it.</p><br /><br /><p>I love my lil buddy<br /><br /></p>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-756792782197118741.post-52001926231666100202011-06-13T19:19:00.002-05:002011-06-13T19:51:23.482-05:00Way to funnyNoah's Piggie is a weirdo<br /><br /><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dwDdwhJ5xzl9HURFdCSXPdFOJ8t5gk36LI6zRCzvHc4oygQU0opPH4itGxQnJi2194f0OtHf_tD6-vXIRRv' class='b-hbp-video b-uploaded' frameborder='0'></iframe><br /><br /><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dyxABqbY-UL7MfA_E6Rrs_uQlX-HxbiJyfcV8PcGkt6dCYUam1stF9K2g4RkEZ0eKA-LxQLIfcLzPO5b-WghA' class='b-hbp-video b-uploaded' frameborder='0'></iframe>Unknownnoreply@blogger.com0