He had a seizure on Monday, May 28th
Then on Mon, June 4th he was so tired he could hardly hold up his head....I got a little smile at least
Then came yesterday Thu, June 7th, WOW he’s never had a spazy day like that bad ever
The day started off with him a bit hyper but manageable….he was Corbin talk’in a LOT
While I sit and cry because I just don’t know why? I just don’t know? what am I doing wrong? the pain he goes through is clearly his tummy but WHY? how do I help?
And these crazy extreme spazy Dystonic days I’m at least going in the right direction to get help….Mayo here we come :-D I know I can’t “fix” Corbin’s brain but I’m sure gonna do all I can to make his life better.
I know this rollercoaster life is one of those things, you deal with what it is, because it is….but he doesn’t deserve to live like this….it takes a *LOT* out of him OVER and OVER, YEAR after YEAR….
Here’s him still sleeping at 9pm (just about 11 straight hrs)
I'm going to go try to change him without startling him awake, I don’t want to cause a seizure....I don’t know for sure but it seems when we’ve woken him up and tried to keep him awake, shortly after he falls back to sleep he has a seizure
If he stays sleeping I’m climbing into bed and crossing my fingers he sleeps a little while longer :-D