Saturday, October 16, 2010

Life is Overwhelming

Dear Faithful Followers,

I'm sorry I haven't updated, I hope there's still some of you left.

I’m using FaceBook to do everyday life updates. I love Corbin’s website & I’m very proud of it but emotionally I just can’t deal with the rude, ignorant and hurtful things people write. You know, even though it’s just some a$$hole’s opinion, it’s still hurtful.

All I have ever wanted was to share Corbin’s story with you all and of course being his momma that had the most HORRIBLE thing ever happen to her baby, yeah my feelings are going to come out in just about anything I write.

GET OVER IT….is that a fair thing to say to someone under my circumstances????

So away, please feel free to friend request us….Corbin AndCaradie

Here are a few more important updates….

1. I’m homeschooling Corb this year. NO one will tell me I can’t be with my child!!!! I have big plans with my baby bear :- ) Field Trips are being taken care of. For now I was able to get an Aquarium membership (soon YMCA and Depot memberships too). We can go at any time and even the parking is totally paid for. We went for the first time, about a month or so ago. I was so amazed; he understood what to look at. It was just so cool to watch him find the things I asked him too. For socialization Momma is volunteering at Head Start in the 2yr old classroom. Corb’s GirlFriend’s (Hi Sarah) son is in that room too. So far we have gone 3 times and I think it’s going to be a great fit for all of us. On Thu during circle time I explained to the kids that they can’t touch Corb because it scares him but they can talk to him and give him toys. And also please be careful not to step on him when he’s laying on the floor. All the little girls were listening very closely lol boys not so much :-) I’ve known Miss Debbie since Noah was about 5, so I think this will be great!!!!

2. Corb’s dog Jak is a COW!!!! He weighed 70# about 2 months ago. The reason I know this is because I had to bring him to the vet, he was allergic to the new food I had bought him. He had broken out in a really bad rash. Went to the Vet she gave me an antibiotic and within an hour of taking that med he had a MAJOR allergic reaction. OMGoodness it was so bad!!!! I could actually see more hives popping up right in front of my eyes. I won’t sugar coat it, he has been just a LITTLE challenging. I really didn’t want to get a puppy but I just didn’t wanna make the brothers wait any longer :- ( I have worked with many dogs in my life but never one like him. He is trying though.

3. I brought Corbin down to the Mayo clinic in Rochester MN because of all the tummy issues he has. They did EVERY test imaginable and they came up with Bacterial OverGrowth in his small intestines, which was a simple breath test that the Doc up here should have done in the first place. Not sure why Mayo didn’t try that test while we were down there the first time either, but at least we know now. He will be taking an antibiotic 1 week out of every month. I think its helping; he at least hasn’t been in extreme pain so far.

4. We didn’t get the MakeOver again, but life goes on.

5. The waiver lady is working really hard to help me get the things Corb really needs, like a new feeding chair, refer to #2, yeah Jak ate a big hunk out of the chair UGH! But crafty me lol I went out and got red duck tape, taped the sh&! out of it and it looks great lol I figure I will use the mended one at school and the new one at home.

6. HUGE news, Corb has an appointment at the end of the month with an OT for an eval for the Dynavox EyeMax (Donna THANK YOU so much for getting this all started). I don’t know what will come of it but I got new info that makes it sound like it won’t be as hard as the other rep said. This Augmentative Communication device will change his/our lives forever. I know he is a bright boy but facial expressions and sounds aren’t enough!!!!

7. Corb has had some huge steps lately, one of which is in his awareness of his own arms. Because of Corb's extreme spasticity, he is learning how to use his tone to purposely move his own arms/hands. If Corb is left alone to try on his own he actually makes contact. Sadly when we try to help him play, his lil brain goes crazy, he gets distracted by what you're saying, the tone kicks in and then he has to work super hard again to try to do what you wanted him to do in the first place....he never has enough time to get it all processed so he can make his very tight muscles listen to him.

8. One last thing, I was talking to Corb’s Doc and seen another mom post about this certain movement disorder. Corb is on a med for it but I have been researching it like crazy, for days, there are more aggressive treatments, So there may be a huge turn of events….to be continued

1 comment:

nanci bogan said...

Hi Caradie, I won't leave you any rude comments!!! I am glad that Corb is doing pretty well, glad he has some exciting things going on in his life. I also follow on facebook, so will see you there!! Give Corb a big kiss from me! love nanci