He had a seizure on
Monday, May 28th
Then on Sunday, June 3rd
he had a very rough pain day….it always seems like it’s his tummy that is upset
(like cramps and gas)
Then on Mon, June 4th he was so tired
he could hardly hold up his head....I got a little smile at least
Then came yesterday Thu,
June 7th, WOW he’s never had a spazy day like that bad ever
The day started off with
him a bit hyper but manageable….he was Corbin talk’in a LOT
As
the day progresses all the more spazy he got, then it turned into one of his
full on crazy spazy nasty days
Here
he is at midnight, even after I tried giving him some of his Valium (never
tried it before and it didn’t help AT all)
He was actually awake until 10:00am, Fri 8th (26ish straight hours of being awake)
He
was pretty calm and totally exhausted….I was taking a video of him to show how
sleepy he was when he began throwing-up
While
I sit and cry because I just don’t know why? I just don’t know? what am I doing
wrong? the pain he goes through is clearly his tummy but WHY? how do I help?
And
these crazy extreme spazy Dystonic days I’m at least going in the right
direction to get help….Mayo here we come :-D I know I can’t “fix” Corbin’s
brain but I’m sure gonna do all I can to make his life better.
I
know this rollercoaster life is one of those things, you deal with what it is,
because it is….but he doesn’t deserve to live like this….it takes a *LOT* out
of him OVER and OVER, YEAR after YEAR….
Here’s
him still sleeping at 9pm (just about 11
straight hrs)
I'm going to go try to change him without startling him awake, I
don’t want to cause a seizure....I don’t know for sure but it seems when we’ve woken him up
and tried to keep him awake, shortly after he falls back to sleep he has a
seizure
If he stays sleeping I’m climbing into bed and crossing my fingers
he sleeps a little while longer :-D
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