Fundraiser: Postponed until the Extreme makeover announces who is chosen this time. If it's us, well....we really won't need to have one.
Job: Bill got a temporary full time job with the census. It's been really nice to have a routine of him leaving at 8:15. When daddy is here we don't get as much done.
Therapy: Now Corb has no therapy again!
Colleges: Corb and I do still go to the PT clinic at Lake Superior College and the OT clinic at St. Scholastica. The kids are great but it was really nice having experienced therapists.
Bed: I decided it was time for Corb to have a hospital bed and honestly I didn't ever think MA would approve it but they did but it's HUGE. I'm not totally sure what to do.....
Moving rooms: I moved the couch into Corb's room and moved his bed over so I could add another shelf. Now there's no way that bed will fit in that spot. I'll figure something out but for now I can't even get to the therapy table :-( but I still do exercises with him on his bed.
Stander: Not sure where I'm going to put it lol but we are getting a stander to borrow. It should be in town around the 27th then I can go pick it up.
Potty/shower chair: It's a long story but for the short version, Corb almost never goes potty when he don't have a disposable chuk pad on (it's his blue thing, I put them on him like a diaper) So I got a hold of Kirsten from National seating and mobility she's the WI MA PA guru. She sent me a list of seats that MA has covered in the past. And instead of getting one that might not work, I asked if there was a way to have a trial first and it's so awesome some companies will do that. I really think if we find the right seat that don't scare or hurt him he can learn to potty (poo at least) in a potty chair.
Gait trainer: Kirsten and I are also starting the process of getting a trial of a walker, we just need a therapist. At least we only need a therapist to do an eval, we don't actually have to HAVE a therapist.
Botox: I have spoke with many Doctors about Botoxing Corb's jaw to help with the weird mouth opening problem he has. Dr. Trombino is Corb's normal Botox doc but there is no ENT (ears nose throat) willing to help her so Dr. Murphy (yeah he's back safely from Irac), is having us go to the ENT he uses, for a consult. Then we will all decide together where the Botox will work the best for Corb. I'm excited because we have been talking about also doing the muscles in the back of the neck, the trapezius and the triceps.
PCW's: Things are going so much better since I stopped having the company find me people. I interviewed a girl (Mandy), she went in and got hired, had the training-in day today and she starts next Mon. Sarah and her are working on their schedules together. It's so nice having Sarah back she helps take care of things so I don't have to try to remember everything lol. It's so helpful to have someone that know you and understands you so much that their always one step ahead of you. I hate workers that just stand there until I tell them what to do next UGH!!!
Reaching: OMGoodness Corb loves he's new ability. He touches everything lol. Like tonight he knocked my whole plate of supper on the floor lol
Jak: Things weren't going well with Jak. I even called the shelter to see what to do. He was starting to get a bit aggressive and the play biting was out of control and the damn chasing his tail, you know how annoying that sound is all day long lol. But....the best $32 thing I ever bought in my life has changed things a LOT. It's called a gentle leader, it's the most amazing tool. I will just get a video of it but with it on he behaves instantly.
Anyway this took me two hours, I'm off to bed.
Caradie and Corbin
Tuesday, March 16, 2010
Monday, March 8, 2010
WOW thank you
Really!!! thank you so much for your kind and meaningful words.
Dear Caradie and Corbin,
I am really hoping that you win this time, because your family so deserves it. I wish I knew some way to be sure they would choose your family. I mean all they'd have to do is watch your videos from the beginning to the present time. They wouldn't be able to convince me that they wouldn't fall head over hills in love with Corbin. Caradie, there isn't enough words in the English language to describe what a great parent you are. When "GOD" made you, he then broke the mold and there is no other person I admire as much as I do you. Keep up the good work.
Sincerely,
doggiemom144
I appreciate all of you!!!! I enjoy every minute of being Corb's momma. And I love sharing him with everyone. Hopefully things will slow down a bit soon, so I can update more. And there's a LOT all great news...just gotta find time :-D
Dear Caradie and Corbin,
I am really hoping that you win this time, because your family so deserves it. I wish I knew some way to be sure they would choose your family. I mean all they'd have to do is watch your videos from the beginning to the present time. They wouldn't be able to convince me that they wouldn't fall head over hills in love with Corbin. Caradie, there isn't enough words in the English language to describe what a great parent you are. When "GOD" made you, he then broke the mold and there is no other person I admire as much as I do you. Keep up the good work.
Sincerely,
doggiemom144
I appreciate all of you!!!! I enjoy every minute of being Corb's momma. And I love sharing him with everyone. Hopefully things will slow down a bit soon, so I can update more. And there's a LOT all great news...just gotta find time :-D
Sunday, March 7, 2010
Extreme Makeover Application
How did I do guys?
1. The names and ages of each member of the household
The Fritze's William (dad) 37, Caradie (mom) 34, Austin 14, Noah 12 and Corbin 6 on March 3
2. A description of the major challenges within the home.
Everything is wrong with this house
The bathroom: the layout makes it very challenging to get Corbin in and out of the shower to bathe him and we have no bathtub or room for one so I have to sit Corbin in his bathchair on the floor and his feet stick out of the shower base causing the floor to become wet over and over and it has begun to rot, leaving a huge hole, which we covered with plywood because we would have to repair the foundation before we could remodel. Also the toilet doesn't always flush right.
The foundation: it's cracking on the back portion of the house, causing the house to shift.
The kitchen: the washer and dryer are in the kitchen taking up most of the space, the washer empties into the sink, which has overflowed (many times), causing the countertop, the floor and the cabinets to become rotted. There is very limited counter and storage space. All the pipes from the hot water heater are right out in the open. The electrical box is also right out in the open.
The other two rooms downstairs: they are very small, especially when you have many many pieces of equipment for Corbin's needs. The one room has the dinning table, Corbin's therapy table and the house's only heating source, which is only a space heater. For additional heat we have two electric heaters, one in the bathroom and one in Corbin's room. The other room was the living room but we had to move Corb's bedroom downstairs, as the stairwell is to narrow to carry him up or down it anymore. The couch went in the dinning room, which left you only about three feet from the TV and besides at meal times when the boys sit at the table, we weren't able to all fit as a family to hang out together. And with Corb's bed, all his therapy tools, personal care and daily living items, it's just so much easier taking care for him in his room, Sadly this has kinda torn our family apart for the last almost 5yrs. We just decided to move the couch into Corbin's bedroom. We're hoping with a little more space, we can all spend some time together. The downside we won't be able to eat together anymore.
Upstairs has two bedrooms: one is myself and Bill's. Our bedroom is very small, we have a queen sized bed and it literally takes up almost all of the floor space. The other room is Austin and Noah's it's an OK size but it's really hard having two boys 14yr old and 12yr old having to share everything and they get on each others nerves.
The driveway: it's only rocks, which makes pushing Corbin's wheelchair very hard and in the winter it's hard to shovel.
The garage: it's falling, it's small and it's cluttered.
I have designed a floorplan for this house that would make life so much easier and better but we just have no funds. Since you guys didn't pick us, we had decided to have a fundraiser, to at least repair the foundation and make the bathroom more accessible, but now with this announcement of the show looking in our area again.....I highly doubt anyone is going to want to donate to us, they will want to wait to find out whose chosen.
3. Explanation of why this family is deserving, or a positive role model in their community.
I put my heart and soul into trying to get you guys to notice us. Back in 2007 I worked the whole year getting everything ready to send in. That Dec when we applied, we included videos, pictures and a petition with over 4,000 signatures of support. We applied again in 2009 when you announced you were looking for a family in our area. Within 3 weeks we had over 600 signatures of support again. The whole town was buzzing, everyone kept saying we hope it's you guys, you so deserve it. Many people called and e-mailed me, telling me that they sent in e-mails nominating us too. We even had people standing outside of our house hoping to see that bus. And I know of people this time too that are sending in e-mails about us again.
I don't know what more we can do to show you all we have a great story to tell.....Our house is falling apart, it's very small, it only has two bedrooms and a terrible layout, all for 5 people and tons of equipment for our disabled son. When our little boy was 14 months old he choked on a dog toenail, died in my arms and then when revived he was completely disabled. We were told his brain was damaged so badly that he would likely stay in a vegetative state. I was NOT ok with that, I have worked my ass off for almost 5year now, proving those doctors wrong. My son is no where near in a vegetative state. He understands so much now, he interacts with us, he eats by mouth and even just a few weeks ago he learn how to tell us NO....I will NEVER stop trying to help him get better. I have designed and made all my own equipment and do all my own therapies with him because since he was 3 years old (he's almost 6 years old now), I have had to fight with the state medical assistance to provide him therapy regularly. The lack of therapy has been all because of paperwork. The center has been sending in the prior authorizations on the wrong forms. Wrong form are all trashed right away. And apparently they don't let you know it was the wrong form so all these years he could have been getting true rehabilitation....I am only one person I can only do so much. Not only do I do his therapy by myself, I also have to be everyone else too...an advocate, a nurse, a teacher, a dietitian, a sectary, a personal aide, a mom to two older boys, a wife, a housekeeper, etc etc. I did NOT ask for this job, nor did I apply for it, nor did I get any training, but I wouldn't give it up for the world. Corbin is the love of my life.
Another way I feel we are deserving is because I believe in my heart that Corbin was giving back to me for a purpose. The purpose of touching every person that meets him, in some way or another. You can't help but to smile and have a better day when you meet him. His big blue eyes and huge dimples light up every ones day. I began journaling his story since shortly after his accident. So I designed and manage his website www.CorbinLeeProject.com it has his whole story, updates, videos/pics and other information. Corbin has many faithful follower, they love him like he's family. Also I have had a number of parents searching for help, that have come across Corb's website and they have contacted me asking for help because Corbin and I have inspired them. They want to know what I did/do with him, so they can try it with their disabled child too. I happily answer any questions they may have and if I don't know the answer I will send them to an on-line support group that I also belong too. And many of the families that have children like Corbin because of horrible accidents, become very close. We all have something in common, even though it's a terrible reason, it's helpful to have somewhere and someone to turn too. The common person could never understand what we are going through on a daily basis.
Another thing I do with Corb is bring him to the local colleges so the students can work with someone as hurt as Corb is. The professors pretty much have me teach the student how to do things with Corb and I enjoy every minute and so does he.
A dream of mine would be to start a "new kind" of therapy center, one that teaches parents they are the most important part of their child's recovery and where the college students could come to volunteer their time and in return they will have hands on training. I also have an idea for a book....a how to do it yourself kind.
4. Photos of the family and a photo of the home
2009 family photo:
http://www.dropshots.com/BabyCorbin#date/2009-02-08/18:36:42
Front and back of the house:
http://www.onetruemedia.com/shared?p=8097c092dc1dca74cce99d&skin_id=601
Hour tour: (rooms have since changed)
http://www.onetruemedia.com/shared?p=80715d6a9cfd219f0e0d76&skin_id=601
Videos/pictures:
http://www.dropshots.com/BabyCorbin
A special kind of love:
http://www.onetruemedia.com/shared?p=672b3ff401542608e6934d&skin_id=601
5. Don’t forget to include a contact phone number.
H (715)392-9123
C (218)341-3797
W (715)398-5340
e-mail CorbinLeeProject@yahoo.com
1. The names and ages of each member of the household
The Fritze's William (dad) 37, Caradie (mom) 34, Austin 14, Noah 12 and Corbin 6 on March 3
2. A description of the major challenges within the home.
Everything is wrong with this house
The bathroom: the layout makes it very challenging to get Corbin in and out of the shower to bathe him and we have no bathtub or room for one so I have to sit Corbin in his bathchair on the floor and his feet stick out of the shower base causing the floor to become wet over and over and it has begun to rot, leaving a huge hole, which we covered with plywood because we would have to repair the foundation before we could remodel. Also the toilet doesn't always flush right.
The foundation: it's cracking on the back portion of the house, causing the house to shift.
The kitchen: the washer and dryer are in the kitchen taking up most of the space, the washer empties into the sink, which has overflowed (many times), causing the countertop, the floor and the cabinets to become rotted. There is very limited counter and storage space. All the pipes from the hot water heater are right out in the open. The electrical box is also right out in the open.
The other two rooms downstairs: they are very small, especially when you have many many pieces of equipment for Corbin's needs. The one room has the dinning table, Corbin's therapy table and the house's only heating source, which is only a space heater. For additional heat we have two electric heaters, one in the bathroom and one in Corbin's room. The other room was the living room but we had to move Corb's bedroom downstairs, as the stairwell is to narrow to carry him up or down it anymore. The couch went in the dinning room, which left you only about three feet from the TV and besides at meal times when the boys sit at the table, we weren't able to all fit as a family to hang out together. And with Corb's bed, all his therapy tools, personal care and daily living items, it's just so much easier taking care for him in his room, Sadly this has kinda torn our family apart for the last almost 5yrs. We just decided to move the couch into Corbin's bedroom. We're hoping with a little more space, we can all spend some time together. The downside we won't be able to eat together anymore.
Upstairs has two bedrooms: one is myself and Bill's. Our bedroom is very small, we have a queen sized bed and it literally takes up almost all of the floor space. The other room is Austin and Noah's it's an OK size but it's really hard having two boys 14yr old and 12yr old having to share everything and they get on each others nerves.
The driveway: it's only rocks, which makes pushing Corbin's wheelchair very hard and in the winter it's hard to shovel.
The garage: it's falling, it's small and it's cluttered.
I have designed a floorplan for this house that would make life so much easier and better but we just have no funds. Since you guys didn't pick us, we had decided to have a fundraiser, to at least repair the foundation and make the bathroom more accessible, but now with this announcement of the show looking in our area again.....I highly doubt anyone is going to want to donate to us, they will want to wait to find out whose chosen.
3. Explanation of why this family is deserving, or a positive role model in their community.
I put my heart and soul into trying to get you guys to notice us. Back in 2007 I worked the whole year getting everything ready to send in. That Dec when we applied, we included videos, pictures and a petition with over 4,000 signatures of support. We applied again in 2009 when you announced you were looking for a family in our area. Within 3 weeks we had over 600 signatures of support again. The whole town was buzzing, everyone kept saying we hope it's you guys, you so deserve it. Many people called and e-mailed me, telling me that they sent in e-mails nominating us too. We even had people standing outside of our house hoping to see that bus. And I know of people this time too that are sending in e-mails about us again.
I don't know what more we can do to show you all we have a great story to tell.....Our house is falling apart, it's very small, it only has two bedrooms and a terrible layout, all for 5 people and tons of equipment for our disabled son. When our little boy was 14 months old he choked on a dog toenail, died in my arms and then when revived he was completely disabled. We were told his brain was damaged so badly that he would likely stay in a vegetative state. I was NOT ok with that, I have worked my ass off for almost 5year now, proving those doctors wrong. My son is no where near in a vegetative state. He understands so much now, he interacts with us, he eats by mouth and even just a few weeks ago he learn how to tell us NO....I will NEVER stop trying to help him get better. I have designed and made all my own equipment and do all my own therapies with him because since he was 3 years old (he's almost 6 years old now), I have had to fight with the state medical assistance to provide him therapy regularly. The lack of therapy has been all because of paperwork. The center has been sending in the prior authorizations on the wrong forms. Wrong form are all trashed right away. And apparently they don't let you know it was the wrong form so all these years he could have been getting true rehabilitation....I am only one person I can only do so much. Not only do I do his therapy by myself, I also have to be everyone else too...an advocate, a nurse, a teacher, a dietitian, a sectary, a personal aide, a mom to two older boys, a wife, a housekeeper, etc etc. I did NOT ask for this job, nor did I apply for it, nor did I get any training, but I wouldn't give it up for the world. Corbin is the love of my life.
Another way I feel we are deserving is because I believe in my heart that Corbin was giving back to me for a purpose. The purpose of touching every person that meets him, in some way or another. You can't help but to smile and have a better day when you meet him. His big blue eyes and huge dimples light up every ones day. I began journaling his story since shortly after his accident. So I designed and manage his website www.CorbinLeeProject.com it has his whole story, updates, videos/pics and other information. Corbin has many faithful follower, they love him like he's family. Also I have had a number of parents searching for help, that have come across Corb's website and they have contacted me asking for help because Corbin and I have inspired them. They want to know what I did/do with him, so they can try it with their disabled child too. I happily answer any questions they may have and if I don't know the answer I will send them to an on-line support group that I also belong too. And many of the families that have children like Corbin because of horrible accidents, become very close. We all have something in common, even though it's a terrible reason, it's helpful to have somewhere and someone to turn too. The common person could never understand what we are going through on a daily basis.
Another thing I do with Corb is bring him to the local colleges so the students can work with someone as hurt as Corb is. The professors pretty much have me teach the student how to do things with Corb and I enjoy every minute and so does he.
A dream of mine would be to start a "new kind" of therapy center, one that teaches parents they are the most important part of their child's recovery and where the college students could come to volunteer their time and in return they will have hands on training. I also have an idea for a book....a how to do it yourself kind.
4. Photos of the family and a photo of the home
2009 family photo:
http://www.dropshots.com/BabyCorbin#date/2009-02-08/18:36:42
Front and back of the house:
http://www.onetruemedia.com/shared?p=8097c092dc1dca74cce99d&skin_id=601
Hour tour: (rooms have since changed)
http://www.onetruemedia.com/shared?p=80715d6a9cfd219f0e0d76&skin_id=601
Videos/pictures:
http://www.dropshots.com/BabyCorbin
A special kind of love:
http://www.onetruemedia.com/shared?p=672b3ff401542608e6934d&skin_id=601
5. Don’t forget to include a contact phone number.
H (715)392-9123
C (218)341-3797
W (715)398-5340
e-mail CorbinLeeProject@yahoo.com
Sunday, February 28, 2010
Finished......
I finally finished the application. I just sent in the e-mail with all the required info. It's hard to come up with the right words to explain things, in such short notice lol, but I'm hopeful they will notice us this time.
Keep your fingers crossed!
Caradie and Corbin
Keep your fingers crossed!
Caradie and Corbin
Wednesday, February 24, 2010
Re-do...Your never going to believe this
I re-read what I said last night and that totally came across the wrong way, I kinda sounded like an a$$. Let me try again..........
The Extreme Makeover home edition is looking for a family in our area again!!!!!!!!!
I didn't find out about this until like Wed and the deadline is tomorrow Mar 1st. That didn't give me much time. But I'm almost done with the application and I'm gathering older photos and videos and I will send all of it off tonight.
Wish us luck everyone!!!
Caradie and Corbin
The Extreme Makeover home edition is looking for a family in our area again!!!!!!!!!
I didn't find out about this until like Wed and the deadline is tomorrow Mar 1st. That didn't give me much time. But I'm almost done with the application and I'm gathering older photos and videos and I will send all of it off tonight.
Wish us luck everyone!!!
Caradie and Corbin
Sunday, February 21, 2010
Watch out here come the videos lol
Hi Faithful Followers, Well I hope there is any of you left out there lol
Sorry it's been so long again. Theres just been so much going on, it's hard to even take a moment to sit down, let alone try to update. And finding the right the words to explain things, takes way to much time and thought and energy lol And at this point I really can't take to much more to think about LOL
Fundraiser update: Coming soon....we're looking for volunteers and donations, you can contact us by phone, text or e-mail My # 218-341-3797 Sarah's # 218-213-6387 or at corbinscommittee@yahoo.com
Corbin's update: Corb is amazing!!! I still am in awe. The emotions that go along with this HUGE step are very very overwhelming. Could you ever believe the little word "no" the one we wish our "normal" kid would have never learned lol has opened up EVERYTHING. I mean I can (in Corb's world) hold a conversation where he's the one actually making the choices he wants, it's not me just knowing what he would want. Oh ya did anyone every say Corb loves his momma lol well he tells me yes all the time now. He says yes for kisses too Yeah me! Also Corb has so much more control over his arms and he's working towards the hands too. Oh yeah guess what Corbin Lee has decieded to show us he knows how to do, he turns pages of books and in the flap books he even knows to look for the flaps so he can help flip them :-) I'm so proud of my little dude. There's so much more I could talk about but I think I will just leave it at that for now. lol The videos and pics will say a lot anyway lol and theres a LOT. Links at the bottom.....
PCW update: YEAH me! Our Sarah is back. Sarah is amazing with Corb, she's his g/f lol She works here with Corb Mon-Thu for an hour in the evening and all 7 hours Fri's and every other weekend. Jenny is his other, every other weekend aide. She's been with us for about a year and a half. She's also so great with him.
Jak update: Jak is about 23 wks. He is going to be a very big dog! He has naughty puppy behaivors lol but he's a really smart boy. He loves Corb, treats, the treadmill and snow lol He is pretty good with Corb but he's rather hyper now so he don't get to sit with Corb as much but when he's being calm he lays right with Corb. I'm working on teaching him to pick up Corb's toys and put them back on his tray. Well he's willing to pick them up just fine lol but I have to help, well make him let go still. For the most part he's house trained, he has accidents but it's always because I wasn't paying enough attenion opps. Don't get me wrong I'm so very happy we got Jak Jak but OMG I said no puppy lol Wait until you see the video of my floor, you'll understand why. Little Sh--!! lol
Waiver update: We are holding off on the bathroom until after the fundraiser. There are a lot of rules and stipulations for using the funds to remodle a house. One of which is you can only use the funds to modify. We need to add on, fix the foundanation and theres some other work that needs to be done first. So for right now we're going to just use some of the funds for massage therapy, that paperwork is almost done. I found a nice lady here in Superior so as soon as I get the OK I will go meet with her and decied from there. I also asked for cranio sceral but because theres no proven medial evidence they weren't able approve that but the dude told my lady that if we get some rescrech documents they will reconcider. She's also working on finding out if we can use the funds for therapies since we're having such a hard time with MA hence the next update.....
Therapy update: (I may have explained this already) In our state if you want something like therapy, you have to send in a PA prior autherization. The state has therapists that approve, ask for more information or deny services and things like equiptment. Well as many of you may remember I have been fighting since Corb turned 3 to get him therapy. He turns 6 yrs old in 10 days. I'm not even sure if I have updated that he did finally get approved for ST but only for feeding therapy....He don't need to communicate, I guess. And now that ran out too, so we have to wait for a new PA to go threw. Hopefully they won't dick around to long. And you all know he has Jason for OT, his time limit hasn't ran out yet, thank goodness at least its something. And still NOTHING for PT. I'm so ticked off! For all these years I was told that the reason he hasn't gotten approved was because the state kept sending the PA's back and forth, asking for more info or that things weren't coded right but infact this isn't correct. I actually got to speak to the PT rep from the Wisconsin medical assistance in Madison WI and she explained to me that the only hold up is that the person responible for sending the PA's back and forth does NOT get the PA's back to the state within the time limit, in WI you only get 30 days to responde back to the state or the PA has to start all over again and again nothing was ever sent back fast enough. I'm so angry that the freakin problem is bleep bleeping paperwork UGH!!! Needless to say on Mar 2nd he's having a new PT eval and then shortly there after I'm setting up a meeting with the therapist, the manager (what ever she is) myself and Sarah, to go over EVERYthing together BEFORE the PA lady gets to send it off to the state this time. I again, mind you have the 3 doctors letters of recomdation that the PA lady has sent in before. She never sent any of them in at the same time as a PA, so who knows if the right person even got it. BUT......This time EVERYTHING will be sent at the same time. The state lady also let me give her number to the therapist and said I could even call her back if I needed more help too. She sounds kinda cranky but I can't even imagine how horrible of a job that must be. Having desprate moms calling begging her to approve something that by law she can't because it isn't right. I told this lady, it just isn't fair the boy just had a baclofen pump put in and he should have been getting intense therapy this whole time and she said I know!!! I WILL dog them everyday to check if the PA came back for more info and if it does I will DOG them to get their sh%& back in the 30 DAYS too. Can ya tell this pisses me off!!! lol He has the rights to recieve therapy, I will not give in. He deservs this fight. I WILL get him theapy!!!!!!!!!!
ANYWAY....lol
Pics and videos update: For some reason I can't get my dropshots to upload anything so I have just put all the pics and videos into a few montagues on OneTrueMedia. Some are kinda long. Some are kinda boring and Some, I'm VERY annoying lol And in some it seems like I'm teasing him....please know that I don't just keep asking him the same questions over and over like I do in some of the videos, I only did it to show how much he's really understanding. Enjoy....
Nov 2009
http://www.onetruemedia.com/shared?p=a4e877b56c5c2fa0bf19c4&skin_id=701
Dec 2009
http://www.onetruemedia.com/shared?p=a4fc75c628202414936ad8&skin_id=701
Jan 2010 Corb and his puppy
http://www.onetruemedia.com/shared?p=a5164070e765f912474d37&skin_id=701
Jan 2010 Relax time
http://www.onetruemedia.com/shared?p=a555f70b799def2b87c138&skin_id=701
Jan 2010 Choices
http://www.onetruemedia.com/shared?p=a5645f8eba6389143ca8df&skin_id=701
Jan 2010 Jak only
http://www.onetruemedia.com/shared?p=a565ec64c306ae81f6d912&skin_id=701
Jan 2010 Toys
http://www.onetruemedia.com/shared?p=a56997fd4b2d3dafb7e703&skin_id=701
Jan 2010 Versa form pillow
http://www.onetruemedia.com/shared?p=a56d1f6f04f9756c052530&skin_id=701
Jan 2010 Extras
http://www.onetruemedia.com/shared?p=a56dbc4fd600f80eee773c&skin_id=701
Feb 10 2010 Jak loves Corb
http://www.onetruemedia.com/shared?p=a5b455ae516fb458a88b0b&skin_id=701
Feb 10 2010 Swim, Daddy and Oliver
http://www.onetruemedia.com/shared?p=a5b4a7fdddaf958823b61d&skin_id=701
Feb 10 2010 Corb playing with toys
http://www.onetruemedia.com/shared?p=a5b4b644713cf0904f8edc&skin_id=701
Feb 2010 all caught up
http://www.onetruemedia.com/shared?p=a6c2ef1e17bc47a94ad88f&skin_id=701
Caradie and Corbin
Sorry it's been so long again. Theres just been so much going on, it's hard to even take a moment to sit down, let alone try to update. And finding the right the words to explain things, takes way to much time and thought and energy lol And at this point I really can't take to much more to think about LOL
Fundraiser update: Coming soon....we're looking for volunteers and donations, you can contact us by phone, text or e-mail My # 218-341-3797 Sarah's # 218-213-6387 or at corbinscommittee@yahoo.com
Corbin's update: Corb is amazing!!! I still am in awe. The emotions that go along with this HUGE step are very very overwhelming. Could you ever believe the little word "no" the one we wish our "normal" kid would have never learned lol has opened up EVERYTHING. I mean I can (in Corb's world) hold a conversation where he's the one actually making the choices he wants, it's not me just knowing what he would want. Oh ya did anyone every say Corb loves his momma lol well he tells me yes all the time now. He says yes for kisses too Yeah me! Also Corb has so much more control over his arms and he's working towards the hands too. Oh yeah guess what Corbin Lee has decieded to show us he knows how to do, he turns pages of books and in the flap books he even knows to look for the flaps so he can help flip them :-) I'm so proud of my little dude. There's so much more I could talk about but I think I will just leave it at that for now. lol The videos and pics will say a lot anyway lol and theres a LOT. Links at the bottom.....
PCW update: YEAH me! Our Sarah is back. Sarah is amazing with Corb, she's his g/f lol She works here with Corb Mon-Thu for an hour in the evening and all 7 hours Fri's and every other weekend. Jenny is his other, every other weekend aide. She's been with us for about a year and a half. She's also so great with him.
Jak update: Jak is about 23 wks. He is going to be a very big dog! He has naughty puppy behaivors lol but he's a really smart boy. He loves Corb, treats, the treadmill and snow lol He is pretty good with Corb but he's rather hyper now so he don't get to sit with Corb as much but when he's being calm he lays right with Corb. I'm working on teaching him to pick up Corb's toys and put them back on his tray. Well he's willing to pick them up just fine lol but I have to help, well make him let go still. For the most part he's house trained, he has accidents but it's always because I wasn't paying enough attenion opps. Don't get me wrong I'm so very happy we got Jak Jak but OMG I said no puppy lol Wait until you see the video of my floor, you'll understand why. Little Sh--!! lol
Waiver update: We are holding off on the bathroom until after the fundraiser. There are a lot of rules and stipulations for using the funds to remodle a house. One of which is you can only use the funds to modify. We need to add on, fix the foundanation and theres some other work that needs to be done first. So for right now we're going to just use some of the funds for massage therapy, that paperwork is almost done. I found a nice lady here in Superior so as soon as I get the OK I will go meet with her and decied from there. I also asked for cranio sceral but because theres no proven medial evidence they weren't able approve that but the dude told my lady that if we get some rescrech documents they will reconcider. She's also working on finding out if we can use the funds for therapies since we're having such a hard time with MA hence the next update.....
Therapy update: (I may have explained this already) In our state if you want something like therapy, you have to send in a PA prior autherization. The state has therapists that approve, ask for more information or deny services and things like equiptment. Well as many of you may remember I have been fighting since Corb turned 3 to get him therapy. He turns 6 yrs old in 10 days. I'm not even sure if I have updated that he did finally get approved for ST but only for feeding therapy....He don't need to communicate, I guess. And now that ran out too, so we have to wait for a new PA to go threw. Hopefully they won't dick around to long. And you all know he has Jason for OT, his time limit hasn't ran out yet, thank goodness at least its something. And still NOTHING for PT. I'm so ticked off! For all these years I was told that the reason he hasn't gotten approved was because the state kept sending the PA's back and forth, asking for more info or that things weren't coded right but infact this isn't correct. I actually got to speak to the PT rep from the Wisconsin medical assistance in Madison WI and she explained to me that the only hold up is that the person responible for sending the PA's back and forth does NOT get the PA's back to the state within the time limit, in WI you only get 30 days to responde back to the state or the PA has to start all over again and again nothing was ever sent back fast enough. I'm so angry that the freakin problem is bleep bleeping paperwork UGH!!! Needless to say on Mar 2nd he's having a new PT eval and then shortly there after I'm setting up a meeting with the therapist, the manager (what ever she is) myself and Sarah, to go over EVERYthing together BEFORE the PA lady gets to send it off to the state this time. I again, mind you have the 3 doctors letters of recomdation that the PA lady has sent in before. She never sent any of them in at the same time as a PA, so who knows if the right person even got it. BUT......This time EVERYTHING will be sent at the same time. The state lady also let me give her number to the therapist and said I could even call her back if I needed more help too. She sounds kinda cranky but I can't even imagine how horrible of a job that must be. Having desprate moms calling begging her to approve something that by law she can't because it isn't right. I told this lady, it just isn't fair the boy just had a baclofen pump put in and he should have been getting intense therapy this whole time and she said I know!!! I WILL dog them everyday to check if the PA came back for more info and if it does I will DOG them to get their sh%& back in the 30 DAYS too. Can ya tell this pisses me off!!! lol He has the rights to recieve therapy, I will not give in. He deservs this fight. I WILL get him theapy!!!!!!!!!!
ANYWAY....lol
Pics and videos update: For some reason I can't get my dropshots to upload anything so I have just put all the pics and videos into a few montagues on OneTrueMedia. Some are kinda long. Some are kinda boring and Some, I'm VERY annoying lol And in some it seems like I'm teasing him....please know that I don't just keep asking him the same questions over and over like I do in some of the videos, I only did it to show how much he's really understanding. Enjoy....
Nov 2009
http://www.onetruemedia.com/shared?p=a4e877b56c5c2fa0bf19c4&skin_id=701
Dec 2009
http://www.onetruemedia.com/shared?p=a4fc75c628202414936ad8&skin_id=701
Jan 2010 Corb and his puppy
http://www.onetruemedia.com/shared?p=a5164070e765f912474d37&skin_id=701
Jan 2010 Relax time
http://www.onetruemedia.com/shared?p=a555f70b799def2b87c138&skin_id=701
Jan 2010 Choices
http://www.onetruemedia.com/shared?p=a5645f8eba6389143ca8df&skin_id=701
Jan 2010 Jak only
http://www.onetruemedia.com/shared?p=a565ec64c306ae81f6d912&skin_id=701
Jan 2010 Toys
http://www.onetruemedia.com/shared?p=a56997fd4b2d3dafb7e703&skin_id=701
Jan 2010 Versa form pillow
http://www.onetruemedia.com/shared?p=a56d1f6f04f9756c052530&skin_id=701
Jan 2010 Extras
http://www.onetruemedia.com/shared?p=a56dbc4fd600f80eee773c&skin_id=701
Feb 10 2010 Jak loves Corb
http://www.onetruemedia.com/shared?p=a5b455ae516fb458a88b0b&skin_id=701
Feb 10 2010 Swim, Daddy and Oliver
http://www.onetruemedia.com/shared?p=a5b4a7fdddaf958823b61d&skin_id=701
Feb 10 2010 Corb playing with toys
http://www.onetruemedia.com/shared?p=a5b4b644713cf0904f8edc&skin_id=701
Feb 2010 all caught up
http://www.onetruemedia.com/shared?p=a6c2ef1e17bc47a94ad88f&skin_id=701
Caradie and Corbin
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