I can't remember if I mentioned that I sent Corbin's PCW company a huge packet for them to send in, while asking for more hours. In the packet I explained, detail by detail adding up for 13 hours a day, I of course knew I wouldn't get that many, but it would have been nice to get more then 3 hours and 45 mins. It's better then none I guess.
I was pretty sad but I'm feeling better about it now.
The new hours will be 7:30-12:15 and 4:30-7:30
Sarah and Jenny should be able to stay. And the new Tiffany is hoping to stay. So we need one more and then a float.
http://www.dropshots.com/babycorbin
Caradie and Corbin
Saturday, May 16, 2009
Sunday, May 10, 2009
“Miniature therapist....”
I'm unsure if I have ever mentioned my councilor Linda, well she has been my savior, I'm pretty sure I wouldn't have been able to handle what has come into our lives.
Last week Linda told me I deserved Sarah. As she is a wonderful worker, she loves Corb so much & I'm proud to say she's my friend (until now, I haven't had any in-person friends, since before Corbie's accident) & her son, Jackson has become our families “Miniature therapist....” We all have been working through our feelings (even Bill lol)
Please take a look at his dropshots “First skating” and “Walking/playing with Jackson”
Caradie and Corbin
Last week Linda told me I deserved Sarah. As she is a wonderful worker, she loves Corb so much & I'm proud to say she's my friend (until now, I haven't had any in-person friends, since before Corbie's accident) & her son, Jackson has become our families “Miniature therapist....” We all have been working through our feelings (even Bill lol)
Please take a look at his dropshots “First skating” and “Walking/playing with Jackson”
Caradie and Corbin
Sunday, May 3, 2009
First Circus
Corb was to young to bring him to the circus before his accident and since his accident I didn't feel he could handle something like that but I decided it was time to try.
Me, Austin, Noah, Corbin, Sarah and Jackson. (Shhhh she's Corbin's PCW and her 17month old son) went to the Circus today. It turned out to be a GREAT try. Besides right when it started he did amazing.
When they first started they turned off the lights and started talking at the same time, that scared him pretty bad but he didn't cry. Other then that the only time he jumped was when the popcorn/peanut, ect. people came by. A toy guy noticed that he scared Corb and he bent down and asked me, would he like one of these and he gave Corb a light up toy. I almost teared up :-)
He watched a lot of the acts. If he started to loose interest I would just ask him to look at “what ever” (he liked the elephants the most) he would look right away. He was really bored though LOL. It was boring, so boring Jackson fell asleep for over half of it LOL
After the show Sarah just came back to the house and started early. While she was working with Corb I was playing Jackson and Austin said you play with her kid more then your own (I know he didn't mean it) but oh my goodness did that break my heart, I ran to the bathroom crying. I pulled myself together and then as soon as Austin seen me he asked what's the matter mom and I tried to say lets not talk about it and I lost it again UGH!!! I haven't cried about Corb in a very long time but WHOA that was harder then I thought. Playing with a toddler made me miss Corbin in away but I really don't remember him anyway.
After they left I laid by him telling him how much I loved him, tears rolling and he was just looking and looking at me, I think he understood I was sad.
I have a few videos to add on dropshots but it's getting late so I will upload them tomorrow.
Caradie and Corbin
Me, Austin, Noah, Corbin, Sarah and Jackson. (Shhhh she's Corbin's PCW and her 17month old son) went to the Circus today. It turned out to be a GREAT try. Besides right when it started he did amazing.
When they first started they turned off the lights and started talking at the same time, that scared him pretty bad but he didn't cry. Other then that the only time he jumped was when the popcorn/peanut, ect. people came by. A toy guy noticed that he scared Corb and he bent down and asked me, would he like one of these and he gave Corb a light up toy. I almost teared up :-)
He watched a lot of the acts. If he started to loose interest I would just ask him to look at “what ever” (he liked the elephants the most) he would look right away. He was really bored though LOL. It was boring, so boring Jackson fell asleep for over half of it LOL
After the show Sarah just came back to the house and started early. While she was working with Corb I was playing Jackson and Austin said you play with her kid more then your own (I know he didn't mean it) but oh my goodness did that break my heart, I ran to the bathroom crying. I pulled myself together and then as soon as Austin seen me he asked what's the matter mom and I tried to say lets not talk about it and I lost it again UGH!!! I haven't cried about Corb in a very long time but WHOA that was harder then I thought. Playing with a toddler made me miss Corbin in away but I really don't remember him anyway.
After they left I laid by him telling him how much I loved him, tears rolling and he was just looking and looking at me, I think he understood I was sad.
I have a few videos to add on dropshots but it's getting late so I will upload them tomorrow.
Caradie and Corbin
Saturday, May 2, 2009
Thursday, April 23, 2009
So much to update about.
I don't even know where to begin, I just know I'm so proud of Corb for trying so hard & being such a good boy through all this.
Since the pump he has been doing a few different things.
He has been making different sounds while “goober” talking & laughing.
He's sitting very well, many seconds without help.
While on his tummy, some of the time, he's able to bring both arms forward. Not over his head YET
He has been able to reach for things better, him & I have learned how he has to do it while sitting in his feeding chair, he draws his arm back, opens his hand & when he brings his arm forward to reach for something, he sometimes makes open hand contact but he always touches it. He was playing with play-doh & soft toys & he was able to grab them many times, he even picked up a bear.
He also has walked down the alley two different times this last week & he ROCKED at it. I never thought he would be able to use the walker we have anymore because of the way it's designed but it works fine. He was taking many steps before he would stop, get stiff & then hop but it was very fun. We walked down to meet the new neighbors. They have a large slab of concrete so I unlocked the wheels from going straight & he walked all over. He doesn't like know how steer but he got all over. I would just make sure he didn't run into one of the million kids that were there (she has a day care) lol
Tuesday while his teacher was here, when he was done playing, I sat him on the couch (I didn't turn his shows on) & I sat at the table with his teacher, well he's a bit spoiled LOL he starting huffing, then when I got up to grab something & sat back down at the table, I broke his heart, he got upset, got the boo boo lip (I normally would have run to him but I wanted to show his teacher his reaction) but he didn't lose it, he just had a few tears run down his little cheeks. He has NEVER done that before, if he gets the boo boo lip he's going to completely lose it. She said it's just amazing how he showed a different emotion. Her noticing that & pointing it out, made me feel great. It's so great when others notice the changes too.
Corb has learned to blow, it's VERY funny. When I put my finger or the toothbrush in his mouth,
he closes his lips around it like he's going to suck (he does that too) but now he blows too. My laptop is out of memory so I haven't been able to take many videos, but I'm going to try to get that one, it's just cracks me up every time & I show everyone lol Bill asked me the other day, you sure are amusing your self, aren't you LOL Sure was!!!
He has been doing way better with eating, he's actually taking bits, before you kinda just shoved it in when his mouth was open, now he waits for the bit, also we have been trying to do some baby foods that he has to chew & he's been doing ok with it. Still scares the sh!# out of me though. His drinking is so much better too, he loves his chocy milk. He finds it right away now.
He seems to be understanding more “cue words” like, head back, head up, bend, push straight, wait & when he reaches for something I tell him, put your arm way back & open. I really think he's catching on, since he has better control over his own body. The dose needs to be increased more to really tell how well the pump is working but I can really say for sure it was the right choice!!!!
The wheelchair guy took measurements last week & Corb gets his new chair Tuesday. YEAH!!! Then in a few weeks we will get a Dynavox eye gaze system to try for four weeks.
It has taken to me two days to write this, I can't believe I haven't went crazy yet LOL (it will be 4yrs in a month) I just never imagined my life would be like this, I have so much to take care of & to think about. A marriage, a boy with Aspergers, a boy not doing so great in school, a Corbie kind of child, all the things that come along with special needs like wheelchair, therapies, doctors, medications, the huge pump in him & to top it all off I have three – four other adults to manage (his PCWs) don't get my wrong, I wouldn't give it up for the world but UGH!!! oh and my shrink wants me to start leaving the house for a couple hours, a day a few days a week, without anyone.
Caradie and Corbin
Since the pump he has been doing a few different things.
He has been making different sounds while “goober” talking & laughing.
He's sitting very well, many seconds without help.
While on his tummy, some of the time, he's able to bring both arms forward. Not over his head YET
He has been able to reach for things better, him & I have learned how he has to do it while sitting in his feeding chair, he draws his arm back, opens his hand & when he brings his arm forward to reach for something, he sometimes makes open hand contact but he always touches it. He was playing with play-doh & soft toys & he was able to grab them many times, he even picked up a bear.
He also has walked down the alley two different times this last week & he ROCKED at it. I never thought he would be able to use the walker we have anymore because of the way it's designed but it works fine. He was taking many steps before he would stop, get stiff & then hop but it was very fun. We walked down to meet the new neighbors. They have a large slab of concrete so I unlocked the wheels from going straight & he walked all over. He doesn't like know how steer but he got all over. I would just make sure he didn't run into one of the million kids that were there (she has a day care) lol
Tuesday while his teacher was here, when he was done playing, I sat him on the couch (I didn't turn his shows on) & I sat at the table with his teacher, well he's a bit spoiled LOL he starting huffing, then when I got up to grab something & sat back down at the table, I broke his heart, he got upset, got the boo boo lip (I normally would have run to him but I wanted to show his teacher his reaction) but he didn't lose it, he just had a few tears run down his little cheeks. He has NEVER done that before, if he gets the boo boo lip he's going to completely lose it. She said it's just amazing how he showed a different emotion. Her noticing that & pointing it out, made me feel great. It's so great when others notice the changes too.
Corb has learned to blow, it's VERY funny. When I put my finger or the toothbrush in his mouth,
he closes his lips around it like he's going to suck (he does that too) but now he blows too. My laptop is out of memory so I haven't been able to take many videos, but I'm going to try to get that one, it's just cracks me up every time & I show everyone lol Bill asked me the other day, you sure are amusing your self, aren't you LOL Sure was!!!
He has been doing way better with eating, he's actually taking bits, before you kinda just shoved it in when his mouth was open, now he waits for the bit, also we have been trying to do some baby foods that he has to chew & he's been doing ok with it. Still scares the sh!# out of me though. His drinking is so much better too, he loves his chocy milk. He finds it right away now.
He seems to be understanding more “cue words” like, head back, head up, bend, push straight, wait & when he reaches for something I tell him, put your arm way back & open. I really think he's catching on, since he has better control over his own body. The dose needs to be increased more to really tell how well the pump is working but I can really say for sure it was the right choice!!!!
The wheelchair guy took measurements last week & Corb gets his new chair Tuesday. YEAH!!! Then in a few weeks we will get a Dynavox eye gaze system to try for four weeks.
It has taken to me two days to write this, I can't believe I haven't went crazy yet LOL (it will be 4yrs in a month) I just never imagined my life would be like this, I have so much to take care of & to think about. A marriage, a boy with Aspergers, a boy not doing so great in school, a Corbie kind of child, all the things that come along with special needs like wheelchair, therapies, doctors, medications, the huge pump in him & to top it all off I have three – four other adults to manage (his PCWs) don't get my wrong, I wouldn't give it up for the world but UGH!!! oh and my shrink wants me to start leaving the house for a couple hours, a day a few days a week, without anyone.
Caradie and Corbin
Monday, April 13, 2009
Holy COW
To understand "Holy COW" you will have to watch them all LOL
Man do I love him. Sorry I got kinda loud, I was a bit excited :-)
Caradie and Corbin
Wednesday, April 8, 2009
Circle of Hope
On one of the support groups I belong to has a WONDERFUL lady named Kate, she is the founder of Circle of Hope. She makes BEAUTIFUL quilts for each child on this group, exclusively. And it was Corbie's turn, she teased me the whole time, telling me I would love it but she wasn't going to tell me the theme, well she was totally right I LOVE IT
Caradie and Corbin
Forest Animal Quilt
Caradie and Corbin
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