I know I said I was going to answer each comment on the comments page but I believe this post is to special to just stay there.
Caradie,
God created beautiful creatures and one of the greatest gifts he created was Corbie. Your beautiful boy has a way with pulling at my heart strings and leaving some huge imprints. So I guess I have to say is, thank you to Bill and you for sharing Corbie with me.....Darlene
Darlene,
OK now I'm crying.
Corb sure means a lot to me & I believe part of the reason why he was given back to me, was to teach everyone something threw his spirit.
Corbin has a way about him that, as long as you have the capacity to let him, he will draw you in deeply.
EVERY where we go Corbin is loved, Wal-Mart, doctor offices, his colleges & especially here on-line where you all get to really know his true self through me & his videos.
THANK YOU all for continuing to keep close tabs on my (our) sweet boy.
Caradie and Corbin
Saturday, December 6, 2008
Friday, December 5, 2008
figured out some stuff
Well I have come to one decision, that I'm about 80% sure Corb will be getting the pump but.... by who & when is very up in the air, because with Murphy I don't know who will be dealing with the pump after it's placement & the other doctor from SMDC is... well not my favorite doctor.
So as soon as I figure out who the right choice is, to have my son in their hands, then we all will know the final decision.
Thanks Ladies We love ya
Caradie and Corbin
So as soon as I figure out who the right choice is, to have my son in their hands, then we all will know the final decision.
Thanks Ladies We love ya
Caradie and Corbin
Thursday, December 4, 2008
decision...decision...
I made two appointments today, one with physical medicine/rehab to talk about the pump issues (not until Feb though) & the second appointment was for the evals with PT, OT & ST (I know this ST she's awesome) at the new place.
Also this month he has a well child check with his peds & an appointment with his ortho. And then his neuro, at the end of Jan. All of which have always felt strongly that the pump would be right for him, so I will have many people to help me make this decision, including you all THANK YOU!!! Sadly the decision it going to take longer then I had planned. If I do decide to do this for Corb I would like it to be done fairly soon because he needs to be all healed & ready to work his little butt off before Sept when he will be starting school (w/me of course LOL)
Well anyway I'm going to bring a CD of the videos I took during the test so all the doctors will have a real way of judging how the test went.
Caradie and Corbin
Also this month he has a well child check with his peds & an appointment with his ortho. And then his neuro, at the end of Jan. All of which have always felt strongly that the pump would be right for him, so I will have many people to help me make this decision, including you all THANK YOU!!! Sadly the decision it going to take longer then I had planned. If I do decide to do this for Corb I would like it to be done fairly soon because he needs to be all healed & ready to work his little butt off before Sept when he will be starting school (w/me of course LOL)
Well anyway I'm going to bring a CD of the videos I took during the test so all the doctors will have a real way of judging how the test went.
Caradie and Corbin
Wednesday, December 3, 2008
Need to ramble
So...I'm going to just be rambling here so bear with me.
Some of the things I'm trying to work through to figure out if this will be right for him, are he had double the dose he would normally get. I don't know if I feel he was loose enough for it being a double dose & he seemed very sleepy, was it because he had been sedated or because he was up 3 times that night before & up by 5:30am that morning or was it because he had to lay flat for 4 hours & was bored or was it the medication. I guess I was a little disappointed that I wasn't able to play with him more, I mean I understand now, why but I didn't ever know before that morning that he would have to lay flat for 3-4 hours. It did seem to be so amazing for the most part though, he was so loose & just so comfortable. He was a wonderful boy, he just laid there on his bed watching the portable DVD player our neighbor let us borrow. I laid him on each of his sides & he didn't even need anything to hold him up onto his sides. He was still giggly but not like normal.
The PT was suppose to stop by every hour, at first he was there a lot then he never came back. Dr. Murphy said it was a positive dose. I have an appointment with the surgeon & then with Dr. Murphy the Tue after that so I still have time to keep figuring out if it's right. It's just to HUGE of a risk to take if you aren't TOTALLY sure. And like Amy said it loosens every where so with his trunk being too loose in the first place it was harder for him to hold himself up but then again maybe he just needs to get used to it. I know that if we decide to go with the pump he will be a totally different child but I don't want him drugged, he just seemed so blahhhh. Also with him being a different child with the pump, I'm working on getting intensive therapy for a few weeks & then all therapies 2x a week & then also school next year. As I have said a million times our state medical assistances isn't the greatest. I have decided that I'm done trying to work with St. Luke's for his therapies, I have called Corbie's doctor & requested a referral to some where else. After thinking & talking to my councilor I have also decided to get a referral to see the doctor that would do Baclofen pumps here. See what it is, is that Dr. Murphy is affiliated with St. Luke's & all the rest of Corbie's doctors are through SMDC so it's hard to know what to do because now I'm leaving the therapy there & I wasn't pleased with St. Luke's for the trial much either but Dr. Murphy has been a great doctor so I'm torn there too. UGH!!!
The test dose lasts about 8 hours but he was still looser then normal 12 hours later.
Caradie and Corbin
Some of the things I'm trying to work through to figure out if this will be right for him, are he had double the dose he would normally get. I don't know if I feel he was loose enough for it being a double dose & he seemed very sleepy, was it because he had been sedated or because he was up 3 times that night before & up by 5:30am that morning or was it because he had to lay flat for 4 hours & was bored or was it the medication. I guess I was a little disappointed that I wasn't able to play with him more, I mean I understand now, why but I didn't ever know before that morning that he would have to lay flat for 3-4 hours. It did seem to be so amazing for the most part though, he was so loose & just so comfortable. He was a wonderful boy, he just laid there on his bed watching the portable DVD player our neighbor let us borrow. I laid him on each of his sides & he didn't even need anything to hold him up onto his sides. He was still giggly but not like normal.
The PT was suppose to stop by every hour, at first he was there a lot then he never came back. Dr. Murphy said it was a positive dose. I have an appointment with the surgeon & then with Dr. Murphy the Tue after that so I still have time to keep figuring out if it's right. It's just to HUGE of a risk to take if you aren't TOTALLY sure. And like Amy said it loosens every where so with his trunk being too loose in the first place it was harder for him to hold himself up but then again maybe he just needs to get used to it. I know that if we decide to go with the pump he will be a totally different child but I don't want him drugged, he just seemed so blahhhh. Also with him being a different child with the pump, I'm working on getting intensive therapy for a few weeks & then all therapies 2x a week & then also school next year. As I have said a million times our state medical assistances isn't the greatest. I have decided that I'm done trying to work with St. Luke's for his therapies, I have called Corbie's doctor & requested a referral to some where else. After thinking & talking to my councilor I have also decided to get a referral to see the doctor that would do Baclofen pumps here. See what it is, is that Dr. Murphy is affiliated with St. Luke's & all the rest of Corbie's doctors are through SMDC so it's hard to know what to do because now I'm leaving the therapy there & I wasn't pleased with St. Luke's for the trial much either but Dr. Murphy has been a great doctor so I'm torn there too. UGH!!!
The test dose lasts about 8 hours but he was still looser then normal 12 hours later.
Caradie and Corbin
Tuesday, December 2, 2008
Would like feedback
After you guys watch his videos will you all give me you opinions of what you see???
I said I was going to tape every hour well I kinda feel asleep while Corb was watching his show & then needed lunch but I got the first few hours & then at 5 & 1/2 hours I taped a lot.
You all can either leave a comment here, leave an entry on his caringbridge guestbook or e-mail me personally corbinleeproject@yahoo.com Thanks
Caradie and Corbin
(there's to much video to upload here so check them out on dropshots http://www.dropshots.com/BabyCorbin)
The reason I want every ones opinions is because I'm very torn. I need help & I need to work threw all the feelings & pros & cons. UGH!!!
I said I was going to tape every hour well I kinda feel asleep while Corb was watching his show & then needed lunch but I got the first few hours & then at 5 & 1/2 hours I taped a lot.
You all can either leave a comment here, leave an entry on his caringbridge guestbook or e-mail me personally corbinleeproject@yahoo.com Thanks
Caradie and Corbin
Monday, December 1, 2008
Don't have time tonight
Hi everyone,
Sorry I just do not have time to upload the videos & blog tonight. I will get to it tomorrow afternoon. Corb has his teacher in the morning.
Caradie & Corbin
Sorry I just do not have time to upload the videos & blog tonight. I will get to it tomorrow afternoon. Corb has his teacher in the morning.
Caradie & Corbin
OMGoodness
It's been an hour & 1/2 & the results are AMAZING already. I'm going to video tape about ever hour & I will upload them as soon as I can.
Caradie & Corbin
Caradie & Corbin
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