FaceBook....Kindness

I wanted to remind everyone that I update on FaceBook as often as I can, sometimes all throughout the day.

We got the most amazing mail today....Mr. and Mrs. P made a WONDERFUL donation to Corbin....THANK YOU so very much!

I'm working on picking up a wheelchair tonight for a person in need.

Keep-Up-The-Kindness

Video of News Cast....Gilbert MN

http://www.youtube.com/watch?v=l6gjK896lPg


I'm looking for someone traveling to Gilbert MN in the next weeks or so....to deliver a wheelchair to a daughter of an 85yr old woman.

Northland's NewsCenter

Corbin and our family will be on the news tonight and tomorrow morning, the story is about the kindness of the people in our community, as soon as people read in the eh? column, calls and e-mails started coming in, of people wanting to donate their wheelchair to Corbin.

Here's the reporter that interviewed us, she spent a lot of time helping us tell Corbin's story and taking down the information about....Donate a wheelchair or Need a wheelchair....we want to thank Ivory for all of her time.

Corbin's website.... http://www.corbinleeproject.com/
Photo amd videos.... www.dropshots.com/BabyCorbin Caringbridge.... www.caringbridge.org/visit/babycorbin (I started journaling there a few days after his accident, until I started his website)

I update on Corbin's FaceBook more often then here....Feel free to friend us.... http://www.facebook.com/CorbinAndCaradie

Donations

Check out Corbin's new Donations page

Donate to others....Corbin's websites

We would like to thank everyone for all the kindness….because we found a wheelchair that will work for Corbin, we have been asking potential wheelchair donors if they would like to leave us their name and number and if someone contacts us needing a wheelchair, we then could contact them back, with the "person in need’s" information.

For any information please e-mail us.... corbinleeproject@yahoo.com

Feel free to check out Corbin's websites
www.corbinleeproject.com
Journal from the beginning www.caringbridge.org/visit/babycorbin
Many videos and pictures www.dropshots.com/BabyCorbin

Wheelchair pics

Corbin in his wheelchair.

Corbin in his donated wheelchair (thank you Judy and Gordon)

Just a close-up.

Another wheelchair was donated to us (thank you, Rev. Barb), we will find someone in need and donate it to them.

Corbin's family

Old and Very used

I need to explain the whole story….Corbin still has his personal wheelchair; the one stolen was just an old normal folding wheelchair, we used it to set Corbin’s feeding chair in, to move him through the house and to take him outside. This style of wheelchair was a perfect fit for his feeding chair.

We have received many calls from people offering to help; a very nice couple donated a wheelchair that is a perfect fit, we have had many wanting to donate their wheelchairs, we have also had people offering to purchase Corbin a brand new wheelchair, another lady contacted me offering to donate all of her son’s equipment, we even had sisters offering to hold a fundraiser….with all the wonderful donations, we need a shed to hold the equipment and his daily care supplies in and then we can lock up everything.

We are so touched and honored that so many people want to help.

There’s a lot been going on

To start off we had a devastating blow….our Hard Drive crashed and I lost 7yrs of hard work and dedication….I’ve cried many tears over this.

Now to the good stuff
I have been working on getting equipment/stuff with Corb’s Waiver (now that we have therapists things should go a little smoother). Some of the things are….a rover/stroller, gait trainer, a Dynavox eye gaze system, all sorts of switch toys and a few switches, books and maybe convert our van (that aint looking to promising though)


In-home Therapy
Meeting new people is very hard for me, I’m always home and for the most part I’m alone so I don’t have a whole lot of interaction with people *blushing* but….it’s been a few weeks with OT, PT and ST and I think things are going great (amazing story at the end) the therapists are very hopeful that they will get more then 10wks….me not so much, when ya been shot down as many times as I have…it’s hard to have much faith that Medicaid will approve more time….Corb is doing a great job and we’ll prove it!!!!

Not himself
Corbin is very loose, he’s still got movements that take over but he’s so very calm….sadly we’ve lost his pizazz, he’s just not himself :-( I’ll take the loose and calm but the Blah has gotta go! (I can't get videos to upload here....DropShots)

During therapy
Corb has been doing things I never thought possible, partly because he’s soooo Loose and Blah/Calm but….he’s reaching for things, sometimes on accident but a lot more are on purpose, he’s sitting nicely, he’s purposefully choosing more and more things, his finding what we ask him to find, is so fast now (even just a year ago his reaction time was much slower). All three therapists have got me cry’in, they all have said how much amazing potential he has!

Cute story about his comprehension….he now knows that burps and farts are funny

Doc appt
Some of you may remember Corb’s mouth was bleeding awhile back, well got him into the dentist and then the oral surgeon….next time he has Botox they will just put him all the way under (at the hospital) then they will do the Botox and the tooth extraction….I was so excited when the Oral Doc said they can do both at the same time….I’ll way take one sedation versus two any day!

Texa$$
With the acceptation of Noah we are all still thinking about moving to TX….(I kinda got cold feet)….never even been anywhere….just picking up and moving is a scary plan LOL

Baclofen pump (working or not working)
As ya all know, Corb is a very tight, ridge, hyper kind of kid….we were questioning if the pump is even working so at his next refill, the Doc is going to have to give him an extra pokie, to do a catheter port access study….we have been talking about decreasing his dose to see if it does anything but…….now with him being so super loose I’m not sure what to think….maybe it wasn’t working, then at the last refill, it started working….I don’t know!

Now hold on tight, you’ll never believe this
Corbin’s outside wheelchair (it was a very old beat up one) was stolen right out of our back yard, also at least one bike (we have a pile lol)….well I e-mailed the Duluth News Tribune asking how much it would cost to place an ad, someone e-mailed me a price but later today someone else e-mailed me asking if they could put an ad in the “eh? Column”

Extras

Mr. Blue….I was messing around with my photo editor and with the right setting his eyes are an incredible shade of blue (he doesn't have a black eye, he just has dark circles)

New toy rack.... (I can't get videos to upload here....DropShots)

We have unique pets....Oliver (cat) and Jak (dog) like Smudge and Coco (guinea pigs)

Corbin’s aides has a new puppy….Meet Sally (again I can't get videos to upload here....DropShots)

Ok on to the amazing story
Corbin Lee sat on a pretend red horsy (bolster) very nicely, he pushed backwards some but….most of the time he was able to correct himself and here’s the most amazing part….he was even reaching for the switch at the same time.

I love him more then words can explain!

Corbin Lee's way to reach to activate a switch

This video shows how Corbin can actually use his own arm to get the switch (his way)....I LOVE doing things with him where he can succeed!

DropShots

Me and Corb's aquarium trip

Corbin and I went on a trip to the aquarium all by ourselves, Austin isn't ever home, Daddy is super busy with finals and Noah just didn't feel like going.

We had tons of fun hanging out together

This is actually the last picture....he started complaining so we headed out.

He was shocked when I told him to turn to look at the bear.

Watching the kids instead of looking at me lol

Brown duck

Diving duck

Very large moose

He did amazing, he was even tracking the fish.

This trip was so much better then the first one....I think now that I know why he's always so stressed out it's easier to keep him calm....I think being off the Dystonia medication has made more improvements then being on it.

I love my lil buddy

Way to funny

Noah's Piggie is a weirdo

Blue's Clues fear

Corbin has been afraid of Blue's Clue for a very long time....I decided it was time to try watching it (watch at 5:25 MailBox comes in) Poor kid!

Blue's Clues

Videos....Dropshots

I waited like 6 hours for a video to upload here on Blogger and it still wouldn't finish....Dropshots take a few mins lol

Stressed out day

New way

Since I don't have time to explain whats been going on, I'm just gonna start from now....by putting up pics and vids

I gonna say though I'm gonna "try" updating here more often but my computer sucks so BAD!!!!

Testing

I'm seeing if my stupid computer will let me upload videos

FaceBook Friends

Again please feel free to Friend us....CorbinAndCaradie I tried to look up Jake Miller but theres a lot so I'm unsure what one to add I love my site well Corb's site....I just don't know where to start LOL I am working on an update though, just been so busy....been out of town a lot and been real sick....I have pneumonia Thank you for sticking with us!!!!

We're back

I figured out how to moderate the comments when they come in....F with me now mean, rude people.

If there's any of you left trying to follow Corb's story let me know? I wanna know if I really need to keep this site going.

Also please feel free to follow Corb on FaceBook

I tried

The Moorhead MN family is on Extreme Makeover home edition right now!

Our community was so excited because we all thought they were coming back to our area, for Corb!!!!

:-( *heartbroken*